Joja101
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  • Miami, FL
  • United States
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  • Youknow

Joja101's Discussions

Derm In South Florida for Xeljanz

Started this discussion. Last reply by Pamela Jun 4, 2019. 1 Reply

Anyone know of a dr in South Florida that has prescribed and treated patients using Xelijanz????Continue

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Latest Activity

Joja101 is now friends with AloneArchitect and robertking
Jun 8
Joja101 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Need some advise - I’ve had diffuse alopecia for about 4 years. It was a slow loss of hair all over my head. About 16 months ago I started Tofa 16mg from Beacon. Didn’t get any results and kept losing hair. After 11 months it stopped the…"
Jun 8
Joja101 replied to NicoleT's discussion Xeljanz from India
"My in the US but mine is taking long as well. Has yours arrived yet?"
Dec 4, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Really appreciate that Smitty!"
Nov 17, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Just wanted to check in if anyone has been able to get in touch with Mouree. It's been two weeks and I've emailed from two separate emails"
Nov 13, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Has anyone heard from Beacon recently. I'm getting very worried it has been over a week without a reply"
Nov 5, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thank you. Stil waiting for a response, hopefully it comes soon!"
Nov 2, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Is there a new contact for Beacon??? I emailed mouree@beaconmedicare.com.bd 4 days ago and haven’t heard back. I’m running dangerously close to running out of tofa. "
Oct 30, 2020
Joja101 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"After 8 months and not much result on 20 mg Tofacitnib a day i'm getting off it. JMy most recent blood work showed my white blood cell count went down a lot. Below the average :("
May 21, 2020
Joja101 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Spoke with them today. Its now extended until May 6th :/"
Apr 23, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks you two!"
Apr 7, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Thanks you, Whats the email?"
Apr 7, 2020
Joja101 replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Anyone have new contact to place a Beacon order??? Thank you"
Apr 7, 2020
Joja101 and rob are now friends
Mar 31, 2020
Joja101 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks you all. I have a prescription of oral minoxidil that I havent taken yet. I will as my Dr. next month about the prednisone and see what she thinks."
Feb 25, 2020
Joja101 replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Would like advice if anyone can offer some. I've been on Tofacicitinib from Beacon for 5 fulls months. 1st month I took one 11mg per day and the last 4 months I've taken two 11mg pills per day. Still don't have any new hair to show…"
Feb 20, 2020

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Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 8:28am on June 4, 2019, Youknow said…

I am in florida Sarasota atm but i will be back to istanbul in june 7 and might be back here in Sarasota in August again .

 
 
 

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