Lilly
  • Female
  • Rocky River, OHIO
  • United States
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Piotr commented on Lilly's blog post We need your input
"There's something with all vaccines that affect us differently, including the covid vaccine. Everybody's immune system is different. In relation to alopecia, when I was 6 years old in Poland, I had flu like symptoms and I was taken to the…"
Nov 17, 2022
Audrey Mendenhall commented on Lilly's blog post We need your input
"I have struggled with various stages of Alopecia since age 24-I am now 58. On again off again. Following my Pfizer vaccinations ALL of my hair came out within a short amount of time. It was as if I had used a hair removal product and it washed off…"
Nov 16, 2022
Lilly commented on Lilly's blog post We need your input
"No! I just want an opinion to what I posted. What do you think? "
Aug 30, 2022
Cheryl, Co-founder commented on Lilly's blog post We need your input
"Just to be clear.  Are you asking the community if they believe that the vaccine can trigger alopecia?"
Aug 29, 2022
Lilly posted a blog post

We need your input

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to be…See More
Aug 29, 2022
4 Comments
Lilly liked Kim Karacz Caudill's photo
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Miami Paradise - NAAF Conference 3

Jul 18, 2021

Profile Information

Relationship Status:
Single
About Me:
I'm 67 going on 39, single mother surrounded by daily struggles but never giving up. Had alopecia since 1972. I've had it for so long, I don't remember how it feels when you have your hair pulled. That's it. Thank you for accepting me.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Lilly's Blog

We need your input

Posted on August 29, 2022 at 9:17pm 4 Comments

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. 

Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to…

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