Lilly
  • Female
  • Rocky River, OHIO
  • United States
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Lilly's Page

Latest Activity

Lilly commented on Lilly's blog post We need your input
"No! I just want an opinion to what I posted. What do you think? "
Aug 30
Cheryl, Co-founder commented on Lilly's blog post We need your input
"Just to be clear.  Are you asking the community if they believe that the vaccine can trigger alopecia?"
Aug 29
Lilly posted a blog post

We need your input

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to be…See More
Aug 29
Lilly liked Kim Karacz Caudill's photo
Jul 18, 2021

Profile Information

Relationship Status:
Single
About Me:
I'm 67 going on 39, single mother surrounded by daily struggles but never giving up. Had alopecia since 1972. I've had it for so long, I don't remember how it feels when you have your hair pulled. That's it. Thank you for accepting me.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Lilly's Blog

We need your input

Posted on August 29, 2022 at 9:17pm 2 Comments

My first bout with Alopecia was about 8 months after the death of my father. I just turned 10 years old. We were still living in the old country, and I was treated with novocaine injections under my scalp in the area affected. Within 6 weeks, this new hair resembling a rough brush was growing like crazy. 

Fast forward to 1972. In 1970 we came to the States with our mother, an American citizen. It was tough not knowing the language, not having the many friends we left behind, trying to…

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