Linda
  • Female
  • Sturbridge, MA
  • United States
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Linda's Discussions

Alopecia Ophiasis almost all grown back.

Started Aug 3, 2018 0 Replies

After a horrendous year I developed Alopecia Ophiasis for the first time at age 62, lost about a third of my hair along the back, It started to all grow back when I had another couple setbacks in my…Continue

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Linda updated their profile
Oct 9, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"I live in MA and I have been on zeljanz since May great results except no eyebrows for some reason."
Sep 3, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello nzahir my doctor recommended using the foam in addition to xeljanz it helps fill in spots and it is relatively inexpensive.  The thing is you cannot stop using it! if you do the hair does fall out for that reason I have held off on using…"
Sep 2, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Agreed would never forgo the vaccine, having said that my doctor never mentioned anything about stopping xeljanz when I get vaccinated! and a little late now was vaccinated last spring.  I am on the lowest dose 5mg twice a day and my hair is…"
Sep 2, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Newjack my doctor recommended shingles vaccines because Xeljanz can cause skin issues.  I had a Candida outbreak prior to taking this drug, autoimmune I am sure, put myself on a strict candida diet no alcohol etc and it eventually cleared…"
Sep 2, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Good for you had amazing results!  I have been on Xeljanz since May, no side effects no strange blood work. My hair although white is growing back also, I am on a low dose compared to some of the threads I am reading, 5mg twice daily.  I…"
Sep 2, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello sorry I know this is long after your post. I just logged on and had never heard of stopping Xeljanz prior or after the Covid vaccine. My physician never recommended that.  I started 5mg Xeljanz twice a day in May and I had complete hair…"
Sep 2, 2021
Linda left a comment for Samantha Katz
"Gorgeous eyebrows Samantha! nice to see someone from Massachusetts! "
Jul 30, 2021
Linda joined Sara's group
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Xeljanz

The experience of people who have used xeljanz
Jul 18, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Kate, That is heartbreaking, I imagine many of us may end up with low WBC from this drug but I hope not. I too would stop the Xeljanz if it were me, hair loss sucks, but it's not cancer! anyone else on the blog have this happen? "
May 21, 2021
Linda liked Cri1964's photo
Apr 10, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"Hello Sydap I had an appointment with a new dermatologist this week and she is going to start me on the Pfizer drug. She said I am an excellent candidate very excited!"
Apr 1, 2021
Linda replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Looks beautiful!"
Jan 31, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"H what are they using in your trial? "
Jan 31, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"Sydap what are they using for the Australia trials? Is it the JAK inhibitors? Thank you Linda"
Jan 31, 2021
Linda replied to Jim In Cali's discussion Pfizer Trial
"Sabine I agree! I am 66 had a full beautiful head of thick hair, last year over a period of 4 months lost everything, eyebrows, lashes not a hair on my body.  Out of no where! no history of alopecia.  I would love to participate in the…"
Jan 30, 2021

Profile Information

Relationship Status:
Single
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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