Liz Rayl
  • Female
  • Fremont, NE
  • United States
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Married
About Me:
Mother of 6 year old little girl with Alopecia
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://www.raylkids.blogspot.com

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Comment Wall (5 comments)

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At 11:31am on March 18, 2010, Cindy said…
Hi Liz, Have you read The Girl with No Hair to your daughter? I suggest getting it and talking to her about new spots. It is only a matter of time before they either get bigger or she notices. We maintain being up front with Samantha about her Alopecia and never kept anything from her. While I cry inside it has helped to be very accepting of her alopecia and all the ups and downs she may face in her life. Have you contacted CAP yet? If you go to www.hairclub.com there will be a link to the kids club. You need to call and get the application and then locate a hair club for men in your area. You will need a doctors signature on the form because of the tape, but it could be just your ped. They provide 3 free wigs a year and they will do a good job matching her hair color and type of hair. If you are looking for something that is not a wig and pretty and comfy in the warmer weather I suggest www.hatswithhair.com. Sam wore the hairdannas which is hair sewn into a microfiber headband. She LOVED them. and you can wear them wit the hair she she has. T he woman will send you hair sample colors. I send her a pic of Sam and she sent me a few that was a potentially good match. They are expensive, but worth it. How is Megan doing otherwise? Cindy
At 4:14pm on March 3, 2010, Cindy said…
Hi Liz,

Do you know about the Childrens Alopecia Project? www.childlrensalopeciaproject.org. They did there first kids conference last summer and have another one planned for this Aug. They also offer different kinds of support based on your childs needs. You can contact Betsy. She is great. My daughter was 6 by the time she lost all of hair and now at age 8 it is almost all back. She wore a wig for almost 2 yrs. Do you know about the Kids Club? We got wigs for free from them. Let me know if I can be of any help. Cindy
At 7:15pm on February 27, 2010, Cindy said…
Hi Liz, Welcome to AW..How are you? I am mom to an 8 yr old daughter..Cindy
At 11:03pm on February 25, 2010, Joy said…
welcome! this is a great place for friends and support!
At 8:44pm on February 25, 2010, LeslieAnn Butler said…
Hello and welcome, Liz!
How are you and your family today?
LeslieAnn
 
 
 

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