Madeleine
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  • Östergötlands län
  • Sweden
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Madeleine's Discussions

Experience of JAK1 for Alopecia?

Started this discussion. Last reply by Christine Jun 12, 2021. 10 Replies

Hi!I wonder if anyone here has any experience with JAK inhibitors that only focus on JAK1 and have had any regrowth? Rinvoq is an example.Is Xeljanz the best one or can any other JAK work?Really…Continue

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Latest Activity

Christine replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Help me understand what this chart is trying to convey. "
Jun 12, 2021
Mike Staffieri RHN replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"there are natural jakinhibitors"
Jun 8, 2021
SabineTawni replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Thanks for letting me know that--it makes sense that you are not allowed to sell them here.  Best of luck with the CTP-543 and please keep us all posted!"
May 13, 2021
spoilmygurl replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"I didn’t think we were allowed to sell on here. Otherwise I would’ve offered them up a long time ago. "
May 12, 2021
SabineTawni replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Are you interested in selling the unopened boxes?  Keep us all informed on the CTP-543 trial results.  What is the Xelsource program?"
May 11, 2021
Frida replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"I am very curious why did she stop it because I have got my daughter 11 years old on 28 this month is gone be 12 month on xeljanz 5g twice a day  She has got the hair but I am scared every day about her health ... and she might be in the same…"
May 10, 2021
Patchylatchy replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Hello Alo-mom, why did she stop it? Did she have sideeffects"
May 10, 2021
Alo-mom replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"Please keep us or me posted on your progress. Daughter was on Xelijanz for a year or so and grew hair but it fell out over the months following her stopping it. Thank you"
May 6, 2021
macdev replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"je suis persuadé que les voies JAK diffèrent selon les individus...Pour certains , c'est  JAK 1/3 ( Tofa) d'autres JAK 1/2. ( Ruxo , Baracitinib) ....Ils ont en commun JAK 1 ! Oui, je pense que que Jak1 inhibitor…"
May 3, 2021
spoilmygurl replied to Madeleine's discussion Experience of JAK1 for Alopecia?
"I was on Xeljanz for almost a year. Stopped December 2020. Went from 10mg/ day to 20mg/ eventually. Never grew a single strand of hair. I got it for free through the Xelsource program. I was so convinced it would work, I purchased 10 boxes of…"
May 2, 2021
Madeleine posted a discussion

Experience of JAK1 for Alopecia?

Hi!I wonder if anyone here has any experience with JAK inhibitors that only focus on JAK1 and have had any regrowth? Rinvoq is an example.Is Xeljanz the best one or can any other JAK work?Really thankful for your answers.See More
Apr 29, 2021
Madeleine is now a member of Alopecia World
Apr 20, 2021

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Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

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