Madison is very cute, especially in her dress up clothes. Since you said you are participating in the M.D. Anderson study I was wondering if you live in Houston?. We live locally and would love to meet if you do! My daughter is about to be 4 next month. She has had it since her 3rd birthday. She wears hats when we go out and nothing when inside. Occasionally she takes off her hat with close friends & family. As we approach the 1 year mark, I have kind of been thinking about maybe getting a hair hat in case she wants to wear it sometimes? What do you think of those? When did you start discussing/ accepting that her hair might not come back with Madison? Lynn
Hello! Welcome to the website. This place seems unlike any other, with so many supportive people. I, too, have a daughter with alopecia. She's adorable, sweet natured and confident. (Can't say the same for myself some days) lol. She's going to be 3 in July, and has had it since the age of 8 months. Madison looks like a little princess!
Nice to meet you...Your daughter sounds comfortable with who she is..I am glad to hear she is having a good experience in school. I have to say that I admire your daughter and all the other kids out there who have the courage to go to school hairless..Samantha does not leave the house without her wig on. She loves it so I am lucky..I never allowed her to be seen with patches and once we could not cover them any longer we got her a wig..We did not have to push her to wear a wig..She thinks it is cool and I think Hannah Montana helped. I am private about her AA and only our close friends and family know..It is my choice, but of course I can't stop Samantha from sharing if she chooses to do so. Samantha has had AA for almost a year now and once summer was over she aggressively lost her hair..It has been hard and now she has almost no lashes or brows..It will be nice to get know some of the other parents on this board who are facing the same issues...I hope to see you around..Cindy
I've had alopecia since I was 4 years old; during that time I have lived mostly with alopecia totalis, but more recently I have dealt mainly with severe alopecia areata. I have a special affinity for children with alopecia, seeing as how I was a child with alopecia myself.
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