Marina MIlls
  • Female
  • Brisbane
  • Australia
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Marina MIlls's Friends

  • Vesna Devcic
  • Susan - Jon's Mum
  • LeslieAnn Butler

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Profile Information

Relationship Status:
Married
About Me:
Married with two grown up children coping pretty well with alopecia
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (4 comments)

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At 9:31am on January 23, 2010, AARON JEFFREY TWIGG said…
hi I am aaron I have had A U since 36 yrs and I never had had any sign of it before.

I live in brisbane too.

U can email me alienaaronparkes@hotmail.com
love to hear from u
At 11:18pm on November 11, 2009, Susan - Jon's Mum said…
Marina
Thank you for your comments.
You are right about the fact that teenage years are hard enough without alopecia. I think that is one time in your life you never forget.
I can understand how you feel looking in the mirror. That is how Jon feels. That he isnt the same person. I tell him that he is the same person inside but the exterior has changed. I guess, to a degree, that is how you feel when you start aging and your appearance changes.
I have heard good things about the freedom wigs. I have asked Jon if he would like a wig and he says no. Maybe he will change his mind - hard to tell with him. He is depressed a the moment. Sometimes i think things would be easier for him if he had a wig.
I think no matter at what age you get alopecia it would be very difficult adjusting to as our appearance is who we are to others.
I thank you for your concern and hope that you have a nice day, take care.
Regards
Susan
At 9:55pm on November 10, 2009, LeslieAnn Butler said…
Hello and welcome, Marina!
How are things going for you today?
LeslieAnn
At 5:18am on November 9, 2009, Susan - Jon's Mum said…
Welcome Marina
How are you and your family?
I live in the Northern Rivers region of NSW. Not that far from Brisbane.
My son, Jon, has had Alopecia since he was 6. Now 13.
 
 
 

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