I Just became a member of alopecia world and reading all of the positive comments and support for each other is really encouraging. I've had Alopecia Areata since the age of 16 and I am now 23 years…Continue
My name is Nikki and I'm 23 years old. I was diagnosed with AA when I was 16. It has been a tough challenge to overcome and except. I have my ups and downs but try to stay positive. I have a very loving and supportive boyfriend of 6 years; and he has really helped me to get through the downs. I was receiving cortisone shots in my scalp for about the first 3 years of having alopecia. I discovered indents throughout my scalp after those first few years of recieving shots. Although the cortisone was masking the problem it was creating a new one. I realized it was time to stop the treatments. I have tried and experimented with multiple remedies and holistic approaches; none of which seem to be slowing my hair loss. At this point it's at the worst stage I've seen yet and I'm afraid I'm going to lose all the hair on my head. All I can really look for now is support. In the mean time I'm keeping my head high and the positivity flowing.
Do you have alopecia?
Are you age 18 or older?
Yes - I am 18 or older
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Hi - if you still live in San Diego and would like to meet some local folks with Alopecia, we're having a lunch to celebrate International Alopecia Day, Saturday, August 4, 2012.
We're having lunch (margaritas if you want) at Tio Leo's Mexican restaurant at 3510 Valley Centre Drive in Del Mar (It's actually in Carmel Valley, right off Hwy 56 and I-5). You can view their menu here: http://www.tioleos.com/
They're not charging us for the room, but there is a $10 per person (food and beverages total) minimum charge.
Gathering time is 11:30am - it will be casual and will continue as long as we're having fun. I'll bring my "International Alopecia Day" banner and anyone who wants to be in the photos for our annual YouTube video can. If you don't want to be in the photos, that's fine, too. We have a private room in the back of the restaurant. Come bald, in a scarf, or in a wig - or in your hair if you have it!
Please let me know if you're planning on attending so I can give the
Hi Nikki, Thanks for the add and welcome to this site. Alopecia is a horrible disorder that takes away more than just hair and what makes it worse is that it's completely unpredictable. I just want you to know you are gorgeous and stay positive. If you ever need to vent or just talk you can shot me a message. :)
Hi Nikki, I'm glad you have someone to support you through this, it's not easy. It's been an incredibly difficult road for me, but little by little letting people know, family, coworkers, friends, and trying to help them understand where I'm coming from seems to lift some weight off my shoulders. You said you're taking it one day at a time, and that's important, I used to worry so much about the future, and who would ever want me in their life looking like this... but it's pointless, tring to maintain and grow in personality, kindness, knowledge is more important than worrying about the inevitable. Take care!! Be stronger than you think you can be... I'm working on that too. -Sarah
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