"Hello Alo-mom, why did she stop it? Did she have sideeffects"
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Patchylatchy
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Patchylatchy's Discussions
CTP-534 What is your experience.
Started Feb 4, 2021 0 Replies 0 Likes
Hi everyone, I was hoping we could use this thread to discuss CTP-534. The most attended thread on alopeciaworld is the one related to xeljanz. Could we please list here all CTP users what is your…Continue
How soon after your first spot did it take to become AU?
Started this discussion. Last reply by San Fe Jan 19, 2021. 11 Replies 0 Likes
It took me a year from first spot till I lost everything. When did you have your first spot and when were you officially AU?Continue
Xeljanz, CTP 534 when will they be approved
Started this discussion. Last reply by Jade Oct 21, 2020. 3 Replies 0 Likes
Hi Everyone,Wondering if anyone knows what is the difference between Xeljanz and CTP-543? I know both are JAK inhibitors but does one have less sideffects than other? Is one more suitable for AA?…Continue
are my follicles dead?
Started this discussion. Last reply by Nerida Nov 4, 2020. 2 Replies 0 Likes
hello everyone, just wondering can a doctor tell if the hairfollicles say on brows or lash line are dead or not (meaning at some point there is a chance they may grow back)? does that need a biopsy?…Continue
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Latest Activity
"hi everyone. Which JAK inhibitor works for alopecia? JAK 1 or JAK 3? thanks"
"when is this envisioned, it really wont help if its 20 years from now"
"thank you;."
"thank you. Its good that it continue to work though. Does your doctor know when will Xeljanz be approved or any medication?"
"Is it possible by taking Xeljanz for quite some time that after stopping it or decreasing the dosage the alopecia would be worse possibly venegence mode? thank you"
"Hi all. Would you say we have a very strong immune system that should be calmed down or a very stupid immune system?"
"I totally agree. It is quite concerning given that we have an overactive immunesystem."
"from my understanding it takes at least 3 months to take effect in the body. You are on the right track. Hopefully things will be much better soon. "
"How long have you been taking it? What is your doctor plan? Does she was to wean you off since u don't have AU but only AA?"
"Hi Sam. It's really strange that they laughed because jak inhibitors are the future for alopecia and according to my understanding something will be approved in 3 years or so. Maybe not xeljanz but another jak inhibitor. Would you mind joining…"
"Hi everyone, hope someone can help me. I was on 10 mg for quite some time and last month have been on 5 mg for one month. I have not had any loss or spots. Has anyone suceeded in staying at 5mg with no loss or maybe minimal loss? "
"how about trying ctp534?"
"Hi mtran, do you have any updates?"
"Has any of you accompanied xeljanz with strict diet changes such as gluten free ? Has that helped?"
Profile Information
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (3 comments)
- At 12:35am on August 17, 2017,
Niece said…
sorry PAtchylatchy just saw this message..very late! You asked about my AU and if I had AA first. No, I did not. First noticed hairline thinning and within about 3-4 months lost all my hair. Its been over 3 years now..getting easier but to be honest I still struggle with alopecia. Have my hopes set on a treatment/cure in the years ahead. How are you doing?
- At 3:45pm on December 21, 2016,
D Costa said…
- Postpartem spots got very progressive. I started using Thymuskin and feel it really helped slow the process. I'm currently about 50% hair loss right now (same going on five years). Hope this helps.
- At 5:49pm on December 19, 2016,
- Hi my profile probably needs to be updated. I gave birth back in 2011. I was 19 when I noticed my first spot though. Congratulations on your pregnancy!
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