PaulV
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PaulV replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Amazing results Mastros!  Interesting you never lost your hair color (mine is coming in snowy white, other than my eyelashes which have just started to get some color).  "
Nov 2, 2020
PaulV replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hey Nicole, wanted to thank you for all the information and posts you've made - they've been such a huge help.  I'm AU and on my fifth month of JAK treatment.  While my results have been really good, my regrowth feels soooo…"
Oct 11, 2020
PaulV replied to berg's discussion New York Fecal Transplant for Alopecia Study
"Thanks for sharing this, Berg - I'll be very interested to see the results.  Are you participating?"
Jul 7, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Hi all, I’ve started taking tofacitinib from Beacon (11mg morning and 5mg evening). It’s been about 3 weeks now. I’m AU with some eyebrows and eyelashes. I haven’t noticed any results yet (very early days) although I feel…"
Jun 27, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"My DHL package (delivered to Sydney) arrived in a pretty shoddy brown box all taped up.  But hadn't been opened but customs and boxes inside were fine."
Jun 24, 2020
PaulV replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi NYGuy, thanks for posting - it's really encouraging to hear about your experience.  Did you go back to 20mg on the second time around? And did you start on this dosage or work up to it?  I've just started using Tofacitinib…"
Jun 22, 2020
PaulV replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Nat, how did you use Prednisone?  A pulse similar to Carlie or something else?"
Jun 15, 2020
Iggy and PaulV are now friends
Jun 12, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Hi Iggy sure will send you details"
Jun 11, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Hi Iggy, sure thing.  Let me know what you'd like to know.  I ordered 6 months worth, which was a bit risky given Australian law allows only 3 months to be imported at a time (didn't know this when I ordered).  I asked…"
Jun 11, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Just received delivery from Beacon via DHL to Australia.  Took 1 week which is surprising.  Really hopeful deliveries to other countries begin soon."
Jun 8, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"My doctor advised Australia allows the import of 3 months worth of supply.  I've ordered 6 months so fingers crossed.  Here's link to the Australian Dept of Health confirming import rules for anyone from…"
Jun 2, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Beacon are shipping once again.  Received my DHL tracking number yesterday.  Estimated 2 week delivery time to Australia."
Jun 2, 2020
PaulV replied to NicoleT's discussion Xeljanz from India
"Beacon contacted me last week about my order (placed in April).  Apparently DHL operated a special charter to ship medicine out of Bangladesh, and Beacon said they could ship my order that way.  Unfortunately I missed the deadline to…"
May 25, 2020
PaulV is now a member of Alopecia World
May 22, 2020

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Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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