Hello my name is Paula Bowman, I have a son Ray who has Alopecia. Ray is 9 yrs. old, he loves playing games, watching tv, fishing, loves to swim, anything thats FUN.
Hi,
You left a message on my page back in Feb. about the song I have on there "I need you now". Sorry to respond back so late but I dont come on often. I have been a member for some time now but everytime i sign on I cry! Like you, I know that God has a purpose and he makes no mistakes. He puts no more on us than we can bare. This I am still learning.
I will keep you and your son in our prayers and you do the same for Jazz and I.
Does your son have a page? Jazzmyn does and she likes to chat with the other kids. It's her chicken noodle soup for the soul :OP.. plus I wont let her have a myspace. lol
Hi Paula, dropping by to say hi and see how things are going. Have you decided to go to CAP in Aug..Looking forward to meeting you and so many other CAP friends..Is school finished yet?Cindy
I have never gone to one of their events, but I think Ray can be rest assured it won't be like school..I believe alot of it is kid orientated. My husband is going to be going to that hotel on business in two weeks and sam and i are going with him. He is such a baby about traveling long distances by car alone. We will be staying in the same hotel as the CAP conference. I will scope out the place for ya..HEHEHE...Hope you make it. Keep in touch..
The hotel is Sheraton Society, Philadeplhia, PA 215-238-6000, Aug 7-9..Betsy sent out an emailed brochure of the event. If you want me to foward it to you send me your email address.
CAP stands for Childrens Alopeica Project. I am starting a kids support group in my area under this organization. We will do fun activities for the kids and families and it is means of connecting with other families in this area. CAP is trying to expand their support groups for the kids by having families become group leaders and start meeting. I have a back ground in education and decided to do this. There are no groups out here for kids and when we started going through this I could not find anyone to talk to or anyone for Sam to meet. Now, we will have both. Last month, I organized with another person a lunch in Boston. We had adults and children with AA get together and we had a great time. I hope Ray and Savanna get to meet. Samantha and Savanna have been pen pals for the last few months. We are definitely going to CAP Conference in Aug. Did you decide to book a room?
Hi Paula, Thanks for the message. Sam just had her 7th bay this week and we were in Disney..Needless to say I am in recovery mode now. We see her dr on Tues, but she is doing well. Thanks for asking..I see you have connected with Maria. That is great if you guys meet up sometime. In March, I am starting CAP meeting in Mass.I am really looking forward to it...Anything new by you?
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How are you and Ray?
Tracy
You left a message on my page back in Feb. about the song I have on there "I need you now". Sorry to respond back so late but I dont come on often. I have been a member for some time now but everytime i sign on I cry! Like you, I know that God has a purpose and he makes no mistakes. He puts no more on us than we can bare. This I am still learning.
I will keep you and your son in our prayers and you do the same for Jazz and I.
Does your son have a page? Jazzmyn does and she likes to chat with the other kids. It's her chicken noodle soup for the soul :OP.. plus I wont let her have a myspace. lol
Take care
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