Renee
  • Female
  • Noblesville, Indiana
  • United States
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About Me:
My 12 year old daughter has Alopecia and I'm looking for some help with finding support groups, hair products for this specifically, and just some information. My daughter has recently lost most of her hair after years of only spot loss. I'm very concerned about self-esteem, and other emotional issues.
Are you age 18 or older?
Yes

Comment Wall (12 comments)

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At 7:12pm on August 4, 2010, Alyce Martin said…
Renee,

I also live in Indiana. I lost all of my hair at age 10. I have worn a vacuum piece now for over 20 years and I still Love them.

I would be happy to talk to you about what your daughter may go through as a teenager and a young adult.
At 6:13pm on September 2, 2008, Jessica said…
Ps my nieces are 14 and 16 and are very nice is they now all about me and my hair loss issues they would be very welcoming.
At 6:11pm on September 2, 2008, Jessica said…
Hi Renee,

I'm from Chicago Il not far from you my family is in Noblesville small world. I read that your looking for other vacuum wig dealers and I know a wonderful lady who is AU very fun and hip that has had AU for 20 yrs she sells the wigs and then there is another place in Oak Brook Il by the name of Bloombrook International the web site for Karen is www.newlifehair.com look at the pictures they are great and also there are pic's in the newsletters on her site all i can say is wow!!
jessica
At 10:56am on July 14, 2008, Cindy said…
Hi Renee..I am sure you have it in you to help your daughter get through this rough patch and you sound like a wonderful mother to want to grow your hair for you daughter. I have thought about it myself, but I don't think I can get my hair to grow that long. I just started taking something to help me grow it faster. What kind of treatments is your daughter doing? It amazes me how much my daughter is willing to endure to get her hair to grow. Sam has been very good about the whole thing ( treatments) and now that we have having regrowth she just wants to keep at it. As much as it hurts to see her with no hair, I know she will get through life just fine with her spunky outgoing personality...Cindy
At 9:12am on July 14, 2008, Ashley said…
Thank you very much! That's great! I really believe that having a natural looking hair piece really does make all the difference in the world in a person's confidence. It does for me at least. :)
At 12:57pm on July 12, 2008, LeslieAnn Butler said…
Girlfriend, let me know how you like the book, okay?
Hugs!
At 12:22pm on July 9, 2008, Ashley said…
Hi Renee. Since you are not too far from Kentucky, the best place I can recommend on personal experience is the Hair Institute in Lexington. Their contact and website information is listed in my blog on my page. The owners, Eric & Jeletta Johnson are the nicest people, and they have really beautiful natural looking hair pieces. The costs vary, but I'm guessing the vacuum pieces are somewhere around $1500-$2000. But if that's too much, they have many other options as well. I hope that helps a little. Good luck, and let me know if you have any other specific questions.
At 7:55am on July 9, 2008, Mary Sarra said…
Hi Renee, You can do a search of the members here for Olivia Rusk. Her mother and her have a support group that meets at the Fishers library. Hope that helps. Best of luck, Mary
At 5:09pm on July 8, 2008, LeslieAnn Butler said…
Hi Renee,
I understand how hard it is for parents with children who have alopecia! I did a lot of research on it for my new book (which is just out!) called, "If Your Hair Falls Out, Keep Dancing!" You might look on my page and check out the comments from the women who have read my book -- in particular, Liz, who has a teen daughter, Emily. I think it might help a lot! You can get it on Amazon.com, or on the link at the bottom of my page. Let me know!
LeslieAnn
At 8:32pm on July 7, 2008, Cindy said…
Hi Renee, I have a 6 year old daughter with AA. She started wearing a wig in Dec and loves them. I saw you post somewhere that you were looking for wig ideas. First of all, I spent a big buck on a wig that was not custom because I needed it quick and I liked its functionality. It was not my daughters style but we could not wait weeks to get a custom. I tried locks of love and it was a stressful process and then did not qualify. Children with hairloss is easy to work with, but I did not follow through with them. In the end, we are now waiting for a custom hair replacement from the Hair Club for Men. They have a kids club which will provide 3 free hair pieces a year for kids 6-17. They are nationwide and you can get the info on the website. www.hairclub.com. We should be getting her hair any time now. My daughter also wears headbands with hair sewn into them and it has been a great alternative to the summer and days when she is doing errands. I got that from www.hatswithhair.com. I hope you find this info helpful. Please feel free to ask my any questions. Is your daughter trying any treatments? Sam is and we are finally seeing some regrowth, but we have a long way to go if it starts to grow in more..Cindy

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