Robin
  • Female
  • Livermore, CA
  • United States
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Dealing with the Autoimmune Aspect with Diet

Started this discussion. Last reply by Robin Nov 25, 2015. 11 Replies

Hi I am new to Alopecia World. I have Hashimotos and frontal fibrosing alopecia. So that is now two autoimmune conditions. They say if you have one you will have more. I don't really want more and…Continue

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Latest Activity

anettemandell replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"I just came across your post about using CBD oil on your hairline and I think that's a really interesting idea! While I haven't personally tried it myself, I have heard a lot of great things about CBD's anti-inflammatory properties,…"
Apr 20, 2023
sylviecrumbley replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"It's cool to see people exploring new approaches to healthcare and experimenting with natural remedies like CBD. And with medical-grade CBD oil tinctures becoming more widely available, it's worth considering as an option."
Apr 20, 2023
MeganLee5MQ replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"My spouse began using CBD oil on the advice of my mum."
Oct 21, 2022
sampeckard replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Very interesting suggestion. Thanks for sharing it. Tbh, I’ve noticed how CBD has improved my sleep. My friend who works at dispensary brantford recommended that I take it as an anxiety treatment. Eventually, I started sleeping 8 hours a night…"
Sep 8, 2022
koldobrew replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Hemp seeds are a storehouse of vitamins and trace elements."
Jun 28, 2022
MeganLee5MQ replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Does cannabis oil help with depression?"
Jun 25, 2022
sampeckard replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"The results of several controlled clinicalSeveral controlled clinical studies show that individual cannabinoids can alleviate the symptoms of some diseases but have no effect on the course of the disease itself. Such cannabinoids are usually used in…"
May 3, 2022
PriciBlue replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"This is a great idea for starting a business. Clinical studies have shown that CBD oil has anti-inflammatory properties. This makes CBD a suitable ingredient for skin prone to acne and inflammation. The soothing effect also makes this ingredient…"
May 2, 2022
FFAKari replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Hi Shldarey, do you use the drops directly on the bald areas?  Did you see hair growth again?  Or just a stall on hair loss?  I was just diagnosed with frontal fibrosing alopecia last month.  I'm so scared, and will do…"
Oct 31, 2021
Shldarey replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Nice idea! I have used CBD oil for almost five years now, and honestly, improvements appear after two, three weeks after constant use. I have a sensitive scalp, and most shampoos damage it so hard that my skin is irritated and lead to hair loss. I…"
Oct 28, 2021
Ellen replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"I would love to know about the tinctures you are using. Do they have a specific name / miligram? Good luck! Ellen Sabol"
Jun 2, 2021
Joe Nyagah replied to Robin's discussion Regarding my successful trial with cannabis oil tincures! in the group Frontal Fibrosing Alopecia
"Drugs can help to fix certain health issues, but also, using drugs, you can get other undesirable problems.I use CBD oil for treating purposes, but CBD oil isn't a drug, and also, it has no side effects.If you don't believe it, you can…"
Apr 9, 2021
Amerycol replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"I also know that Cbd oils are not as harmful as simply using marijuana in joints. Even if the juices contain the given substance, the concentration is not so high. The first time I tried these tinctures, was about half a year ago and I…"
Apr 7, 2021
Kojack replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Hi Robin it has been 3 years since you posted this and interested in how you made out with it?  Couttoj please provide an update?  Thanks muchly!"
Feb 8, 2021
Bill_Andrews replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Such practice is very rare visible on the internet, google is not giving me enough information to think seriously on practicing personally. Maybe time will pass and more positive results will be visible that will lead more products for a large scale…"
Jan 26, 2021
Demixl replied to Robin's discussion Trying a new approach with CBD oil... in the group Frontal Fibrosing Alopecia
"Hi. I want to Express my opinion on this and maybe help someone. I like no one else faced the problem of insomnia. I got sick with this disease and like all normal people went to the doctor. I have tried many different medications for treatment.…"
Sep 16, 2020

Profile Information

Relationship Status:
Married
About Me:
I have frontal fibrossing alopecia. I am concerned to keep my hair but also that I now have two autoimmune diseases and do not want more! So, at this time I am committed to diet changes and treating the overall inflammation in my body for my general health.
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 5:51pm on November 19, 2018, Dianna said…

I actually do not know. I will find out though and get back to you!

At 3:52pm on November 19, 2018, Dianna said…

Here is what I am currently using based on the consultation I had with SMJ:

Revida Labs 3000 mg CBD oil - 20 mg 3 times a day.  You can order this online from Revida's website. Expensive but supposed to be excellent.

Cannabigerol CBG 20 mg CBG per capsule CBG Isolate custom formulation - one time a day in the morning - I got this through SMJ who orders it from outside the US

Fairwinds Flow Creme - 250 mg CBD, 100 mg THCA, 25 md THC - evening. There are specific directions on how to apply so if  you decide to use this or can even order it, call the company. This is a Washington State company so I don't know availability outside of WA.  You could look at the creme on their website though for the formulation. 

I also have a recipe to make your own creme with the flower. I have not done that yet. They actually preferred I do this as we could control the CBD amount better.

High CBD with a little THC and the correct terpenes seems to be the focus along with fish oil for bio-availability. 

Let me know if the attachments don't open. 

Ailment%20Guide.pdf

Consult.pdf

Epigenetic%20control%20of%20skin%20differentiation%20genes%20by%20phytocannabinoids.%20-%20PubMed%20-%20NCBI.pdf

Ethan%20Russo%20ECS.pdf

human-endocannabinoid-system-e1500759390507.png.pdf

SMJ%20CONSULTING%20TERPENE%20PROFILES.pdf

tale-of-two-cannabinoids.pdf

Terpenes%20and%20the%20_Entourage%20Effect_.pdf

The%20endocannabinoid%20system%20of%20the%20skin%20in%20health%20and%20disease_%20novel%20perspectives%20and%20therapeutic%20opportunities.pdf

At 3:15pm on November 19, 2018, Dianna said…

I had trouble figuring out where to post as well. I may have gotten it right this time! If you would like the name of any of the products I am using or any of the handouts and studies I have, just let me know. I am happy to share!

Dianna

At 11:45am on October 2, 2018, Dianna said…

Hi Robin,

Thank you so much for all of your posts. I do not have a dermatologist who will work with me. It is pretty much lots of steroids or nothing. I am slowly going to stop using the steroid over the next month. Can you describe how you are using the tincture specifically and how much? I am going to try and find it up here in Washington. I tried 100% Cannabis oil last night but it was very hard to apply because it is so viscous. 

Blessings~

Dianna

At 12:07pm on September 26, 2018, Eli said…

Hi all,

The FFA started 5 years ago in my eyebrows.

In 2015 I noticed it on my sides. Still shedding (not much thank God).

So far I am applying rogaine (for men) once a day. No meds for me.

I would love to know more about CDB oil treatment.

thanks :)

 
 
 

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