Shannon H.
  • Female
  • Villa Park, IL
  • United States
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Ericka liked Shannon H.'s blog post Eyebrow Hair Loss?
Sep 29, 2020
DarthSidious commented on Shannon H.'s blog post Eyebrow Hair Loss?
"Well, you can always make tattoo eyebrows or just draw it using cosmetics. I have a friend who have this problem and she just draw it every time she's out of house."
May 26, 2020
Shannon H. posted a blog post

Eyebrow Hair Loss?

Has anyone had success with treating eyebrow hair loss?What products/drugs did you use?I have been using generic Elidel for 2.5months and I am not seeing any success/change.See More
May 22, 2020
Shannon H. updated their profile
Feb 10, 2020
Shannon H. is now a member of Alopecia World
Feb 10, 2020

Profile Information

Relationship Status:
Married
About Me:
I am 41yo and have always been one of those lucky people, where I had thick/wavy very pretty hair. It was one of my best features. I didn't fuss over my hair, it was really easy to manage. I have never even colored my hair, nor do I blow dry. So my hair was always strong and healthy. I could shower, throw it up in a clip for the day and head out the door. I was given the devastating news that I have frontal fibrosing alopecia on 2/6/20. When the derm told me this my mind went blank and I was only hearing every other word she was telling me. I had been doing some research on various alopecia's and knew this was a scarring form of alopecia. Having a background in pharmacy, at this moment, I am not very hopeful with the treatments of choice to put my condition in remission. I am literally shocked that I can't find any studies where they have tried some form of a biologic (specialty medication - eg, Humira, Enbrel, Cosentyx, etc..) to treat this disease considering it is a autoimmune condition and in a lot of cases overlaps with diseases such as Psoriasis, Psoriatic Arthritis, Lupus, etc... Needless to say I have a lot of questions for my derm when I see her during my first appt this week, to get my stitches out from the biopsy. Since we caught this condition so early, all I can do is pray that I see some results from the current medications of choice used to treat this disease. I am very appreciative that I found this website b/c hearing your stories, although difficult to hear, were also helpful for me to know there is a community of people out there that I can turn to with questions/concerns. Thank you for sharing!!! You are all very strong/determined individuals and I am finding strength through your experiences. I am scared to start this new journey in my life and very scared this will be passed down to my little ones some day. All I can do is put it in Gods hands and just know everything will be ok.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Shannon H.'s Blog

Eyebrow Hair Loss?

Posted on May 21, 2020 at 11:47am 1 Comment

Has anyone had success with treating eyebrow hair loss?

What products/drugs did you use?

I have been using generic Elidel for 2.5months and I am not seeing any success/change.

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At 12:37pm on May 20, 2020, Adudé Fafa Akue said…

Hello,

How is everything with you, my name is Adudé Fafa Akue, I picked interest on you after going through your short profile and deemed it necessary to write you immediately. I have something very vital to disclose to you, but I found it difficult to express myself here, since it's a public site.Could you please get back to me on:(adudeakuea@gmail.com) for the full details.

Have a nice day

Adudé Fafa Akue.

 
 
 

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