zarrin
  • Female
  • Almere
  • Netherlands
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Zarrin's Friends

  • AloneArchitect
  • Sonex
  • mastros
  • Ithastogetbetter
  • Maurice

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Latest Activity

zarrin and AloneArchitect are now friends
Feb 14, 2021
Ithastogetbetter and zarrin are now friends
Feb 11, 2021
zarrin left a comment for Maurice
"Hi Maurice, Sorry for the delayed response, I have just seen your message. I would like to talk to you as well. reards, Zarrin"
Feb 3, 2021
Ithastogetbetter left a comment for zarrin
"Hey, My dermatologist is at Erasmus MC. His name is Thio. I am under a trial with the hospital as far as i know. Cheers, Amal"
Feb 3, 2021
zarrin left a comment for Ithastogetbetter
"Hi Ithastogetbetter, I am living in the Netherlands.I have AU and till 6 months ago I used Xeljanz . I stopped Xeljanz as I could not travel to Turkey because of lockdown to buy medicine.Could you please let me know who your physician is and how I…"
Feb 1, 2021
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Dear all, I would like to buy Xeljanz online from India as i am not able to travel to Turkey to buy Xeljanz. Do you know whcih seller company i can contact?"
Mar 2, 2020
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello ,  Next week I have an appointment for influenza vaccination.i am on xeljanz for 2 years with 90% hair regrowth( short and thin hair), I would like to know is vaccine has any effect ,could you please share your experience or knowledge…"
Nov 1, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for advise, Firstly I will decrease the doseduring one week and stop for one month to see improvmet of fungal infection as I cannot stop immeditely.Six months ago when I stoped Xeljanz (because of bronchitis) I had general itching (I…"
Aug 22, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It is very hard to take decision for stoping xeljanz and lose ally hair which was my wish for more than 23 years..I try to treat nail infection with remedy if not help I have no choice and will stop ( living in schaduw ):("
Aug 21, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The physician thinks my immune system is weak because of Xeljanz and my body not able to fights with fungal infection and also there is a chance for invasive fungal infection that will be fatal .most oral antifungal antibiotics cause liver toxicity…"
Aug 21, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi , thank you so much for swift reply. I am really upset and almost crying . i did not try bleach water and probiotica. I wil try it."
Aug 21, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone,  I have a concern and I need your advise. I had Alopecia universalise for almost 22 years . I have been on Xeljanz for 2 years ( 20 mg) and I have complete regrowth but the hair is thin and still using wig. since 4 months ago I…"
Aug 21, 2019
zarrin left a comment for mastros
"Hi Mastros, could you pleaselet me know how I can make an appointment with Dr.Harris? i am living in The Netherlands. thank you in advance and best regards, zarrin"
Jul 31, 2019
zarrin and Maurice are now friends
Jul 31, 2019
Maurice left a comment for zarrin
"Hey Zarrin, I noticed you left a comment mastros' wall, where you stated you live in Almere. I am also from the Netherlands. You mentioned you take xeljanz 20mg daily with almost full regrowth. I'd like to chat with you about that, if…"
Jun 27, 2019
zarrin replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Congratulations!"
Apr 13, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

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At 5:12am on February 3, 2021, Ithastogetbetter said…

Hey,

My dermatologist is at Erasmus MC. His name is Thio. I am under a trial with the hospital as far as i know.

Cheers,

Amal

At 9:56am on June 27, 2019, Maurice said…

Hey Zarrin,

I noticed you left a comment mastros' wall, where you stated you live in Almere. I am also from the Netherlands. You mentioned you take xeljanz 20mg daily with almost full regrowth. I'd like to chat with you about that, if that's okay with you. That would mean a lot to me.

Regards,

Maurice

 
 
 

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