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Relationship Status:
About Me:
I am a 45 year old female who lost all her hair 8years ago.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (5 comments)

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At 11:30am on August 6, 2011, LeslieAnn Butler said…
How great of you to be up for the interview! I hope you will attach a link so we can listen.
I'm glad you want to get my book! I think you will like it. Let me know!
At 10:05am on August 6, 2011, Susan Innes said…
NAAF is the National Alopecia Areata Foundation which every year has a conference somewhere in the states, the location of which is rotated to cover the coasts and midwest areas in alternate years and as replied by Tan B, is in D.C. next year. To learn more about NAAF, visit the website,
At 11:33pm on August 5, 2011, LeslieAnn Butler said…
Hello and welcome, Sue!
How are you today?
Leslie Ann
At 5:24pm on August 5, 2011, Susan Innes said…

It sounds like many possible sources for hair loss in your life; I hope things are much better now, and that your daughter is coping with all of the trauma in her life. My AU is strictly genetic with 2 uncles with alopecia universalis and a cousin's daughter having battled some hair loss which now seems to be in remission. My personal relationships were always supportive with few health problems so there was nothing but bad genes in this case, unless one considers allergies as a cause. I guess technically we are all allergic to our hair.

It sounds like you may still have the possibility of it growing back, but hopefully life will get better without the need for this to happen.

Have you ever attended a NAAF conference or thought about going? Susan
At 4:09pm on August 4, 2011, Susan Innes said…
Hello Sue,

Welcome from another single Sue. Alopecia World does have a single's group in case you are interested in joining us.

I'm just curious; does this disease run in your family or was there any trauma associated with the hair loss?


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