Dear Tammy:
Hi, I'm Cynthia and I am in B.C. I am new to Alopecia world and I am so thankful that I have found others who can share their experiences. My daughter is Taylor-Jean and she is 8 yrs old. She was diagnosed with Alopecia at 2 yrs of age. I remember it being not so bad and like your daughter, it didn't bother her at all. Now she is in grade 3 and all the girls seem to pride their hair as their most valuable pocession. Taylor-Jean wants her hair long like all the other girls and cry's because her scalp hurts so much. She has said that she just wants to be normal like all the other kids. After reading some of your blogs, I just felt that you had a really good grip on dealing with your daughters alopecia and I felt that you might have some good advice. My husband and I talk with our daughter everyday and try to explain the best we can. She just seems so frustrated, angry,sad and different because no one else anywhere around us has alopecia and I think that she feels like she is the only one on earth that has alopecia. She has seen pictures on the computer, but I don't think she really believes it because she hasn't seen others in real life. Anyways, if your have any advice at all, I would be so grateful! Take care,
Cynthia (B.C., Canada)

Hi Tammy,

Until recently my daughter never mentioned anything about her hair. Except for asking why she didn't have any. The other day in middle of having a melt down she blurted out something like " I want my hair to come back". That was it -she just said it in the middle of being upset about something else and then went back to the original thing she was upset about. It was disturbing to hear. My husband and I couldn't figure out why she said it then- was it deep rooted or something? I don't know. She definitely wants her hair back but up until now I just thought (hoped) it didn't bother her much since she never mentioned it or had many questions. Lately, she has been wearing a snow white wig for dress up. She loves it. I have been considering a hip hat for a while and will probably get one soon. I don't know why I have been hesitant. I guess I feel like getting one is giving up hope in a way or admitting it really may not come back or may make her feel she has to hide. ( as you can see I may overthink these things) But on the other hand, I think she would love it and it can be an accessory to be used or not depending on what she feels like doing. I will let you know if we get one.

Hello,
First off, I'm Miranda. Della is my daughter. HA HA It gets mistaken that way a lot. Della is 5 now, and we started talking about a wig in January. She does not like it too much because it is really hot, and so I've made it a point to let her decide when and when not she wants to wear it. I know there are other options, such as a "hip hat". This is similar to a wig but isn't a full head of hair. You wear it with any hat or scarf that you want. I haven't bought one yet for Della, but I know Cindy (Samantha's Mom) has and claims her daughter loves it. But Samantha also loves her wigs. I guess every child is different. The website for the hip hats are www.hatswithhair.com I think the price is less than 200, so it's much less than you'll pay for a wig. I hope this helps, and I would love to get to know you better!

Hello Tammy

My daughter was 3yrs old when she was diagnoised with AA with in three months she had total hair loss, at first she would grow peach fuzz, but then it would all fall out again she is now 6yrs old and has just got use to the fact that she has no hair....but the older she gets the harder it is on her...Just wanted to stop by and welcome you to alopecia world...Your daughter is absoutley beautiful, with a gorgeous smile...Are you doing any treatments for her?? Thank you Maria

A big hello you and to Leah! I've seen her pictures and she is a doll!!! :-D Thanks for your kind compliments!

thank you! your daughter is a beauty.

SHe just has this amazing face she truly is striking.

She is gorgeous she definatly looks like you.

what a cutie!!