cd_385
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Xeljanx 11mgXR

Started this discussion. Last reply by cd_385 Jan 26. 2 Replies

Hi All!I was on Xeljanz XR 11mg for several months in 2020/2021.  From Aug - Dec, it worked to reduce the redness and inflammation on my scalp.  My hair started growing back in December.  It was…Continue

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cd_385 replied to J_s_m's discussion New Patents Approved. Good news ?
"Pfizer could acquire the company for the patents and then never manufacture the patented drugs to prevent competition to their Xeljanz drug.  There was a hopeful treatment for autoimmune diseases (including alopecias) many years ago wherein the…"
Feb 11
cd_385 replied to cd_385's discussion Xeljanx 11mgXR
"Thank you for your response.  It makes me so sad that I am now in a worse state of hair loss than ever before.  I thought this had come under control once I started seeing Xeljanz work.  "
Jan 26
Alo-mom replied to cd_385's discussion Xeljanx 11mgXR
"Hello and yes even with Xeljanz hair can come and go. It can really work for a while and then it can fall out with little notice. The person I know that was taking it was up to 15 mg per day without any bad reactions, but the hair was not coming…"
Jan 25
cd_385 replied to chris_s's discussion routine childhood vaccines and the risk of triggering a flare up
"I agree with you Sabine - it is NOT cosmetic - it is an organ (many small organs).  If any other organ was failing, there would be an intervention.  Losing hair from an alopecia is a signal something is not right.  A body…"
Dec 29, 2021
cd_385 posted a discussion

Xeljanx 11mgXR

Hi All!I was on Xeljanz XR 11mg for several months in 2020/2021.  From Aug - Dec, it worked to reduce the redness and inflammation on my scalp.  My hair started growing back in December.  It was amazing and I thought this was behind me.  I had about 4 - 5 inches of growth in some areas, but then I felt 'different' in the beginning of June and it started to fall out.  I had not stopped taking the Xeljanz, so I do not know why it stopped working.   I had AA in 2004 and 2008, both of which…See More
Dec 28, 2021
cd_385 replied to Jennifer's discussion Autoimmune Protocol Diets
"I am curious about this, too! In my research, some foods can influence immune system (regulate it downward, upward) and some foods can block other signaling + hormones.  But it seems to me that it would need to be very specific to deal with the…"
Dec 27, 2021
cd_385 replied to DJ88's discussion tofacitinib vs baricitinib for alopecia
"thank you, Kevin.   I also was surprised that I had a relapse while on xeljanz (11mgXR 1xday). no covid vaccine, no lowered dose.  my doctor didn't know to increase the dose when I first felt relapse coming on - she doesn't…"
Dec 23, 2021
cd_385 replied to Jim In Cali's discussion Pfizer Trial
"Hi Linda and Sabine, I'm sorry that they discriminate by age.  They should just inform patients that there could be unknown hazardous effects and then let patients decide whether to participate or not (kind of like how they did for the…"
Dec 19, 2021
cd_385 replied to DJ88's discussion tofacitinib vs baricitinib for alopecia
"I was previously on tofacitinib (the brand from Pfizer, 11mg XR), it took 5 months, but I grew hair back and it stopped my inflammation/hair loss.  Things were getting back to normal!  I felt good!  It felt like a miracle. No side…"
Dec 18, 2021
cd_385 liked Joey_C's discussion I Beat AU Twice
Dec 17, 2021
cd_385 is now a member of Alopecia World
Dec 10, 2021

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Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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