i am a 6 year old girl living with alopecia totalis .its been a year since i been diagnosed .my hair had grown back and is now falling off again .my family show me lots of support and love to keep me strong .i am joining alopecia world so that i can become more familiar with the disease and hoping i can meet other children just like me :)
Do you have alopecia?
Are you age 18 or older?
No - I am not 18 or older
Comment Wall (9 comments)
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Thanks for adding Olivia as a friend. I am her mom Sandy and we want to welcome you to Alopecia World. Olivia has had alopecia since she was 2 years old and has lost all of her hair twice. She decided not to wear wigs or hats and handles her condition extremely well. We recently wrote, filmed and
produced a music video about alopecia and bullying. It is called 'I Could Be
Great!' and you can view it on Olivia's page. Just click on videos....Olivia has
never been bullied or teased but we know others who have been. I hope the video helps you to see that you can be great with or without hair. Let us know if we can do anything to help you.
Hi Jennifer..Have you contacted CAP yet? They are based out of PA and I see your in NJ. Do you know what they do? There website is www.childrensalopeicaproject.org. I suggest contacting them and get in their data base. They will also be having Alopeicapalooza in Aug. A conference geared for kids. They run support groups for kids in Reading PA I think. I just started a Mass group. Please send Linda to her Samantha's page and I will be sure she writes back...I am sorry you have to go through this again. Sam is in the regrowth stage right now. She lost all of her hair half way through K last year.She wears a wig now. Are you trying any treatments? Sam is and is having some luck with it now.We will see where it takes us..Cindy
Hi Linda..I have a 7 year old daughter named Samantha. She loves making new friends and writes to come kids her age on Alopecia World. She has her own page if you want to be friends and write to her. She is in 1st grade. We also made a group board so kids your age can exchange messages with your parents helps. It is the Grade school group..Welcome to Alopecia World. You meet some really nice people. You are adorable and you sound like a strong gal...Samantha would love to hear from you..Cindy
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