ling tong
  • Female
  • plano, tx
  • United States
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ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you Mike R for sharing your experience."
Jun 4
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you so much ariel015 and Fingers_Crossed for sharing your experiences. We might pause the medication for 4 or 5 days. In the meantime, my daughter is applying a thin layer of Clobetosol (steroid) to combat any hair loss that might occur. I…"
Jun 4
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thank you for your reply. Hope your patches get filled soon. I am still wondering if my daughter needs to pause the medication for a week. She will be starting her college soon and i am worried of the hair loss. Hoping to hear more experiences.…"
Jun 4
ling tong replied to wfz's discussion vaccination and alopecia areata
"My 17 year old who is on Xeljanz got her first dose of Pfizer vaccine today. Her dermatologist recommended stopping Xeljanz for a week after the shot. Is someone here who took their shot stopped taking Xeljanz too for a week? If so, did you…"
Jun 3
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"My 17 year old who is on Xeljanz got her first dose of Pfizer vaccine today. Her dermatologist recommended stopping Xeljanz for a week after the shot. Is someone here who took their shot stopped taking Xeljanz too for a week? If so, did you…"
Jun 3
ling tong replied to Ithastogetbetter's discussion JAK Inhibitors Xeljanz Tofacitinib - 3 year update
"Hi Ithastogerbetter,  congrats on your hair growth. You look great. My 17 year old daughter has been on xeljanz since 2 years. She is on 15mg. Her growth is nowhere like yours. Even though she doesn't have bald patches, its very thin and…"
Feb 26
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks a lot! Will check with her dermatologist. "
May 21, 2020
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Anna,  Thank you so much for your response. Yes, doctor did increase her dosage from 11mg to 13.5mg. Since she is only 16 years old(soon going to turn 17) not sure how much of the dosage we can increase. Her doctor is very good but is very…"
May 21, 2020
ling tong and Cocopuffz17 are now friends
May 20, 2020
ling tong replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hello All,  This is my first post here. I have been following this forum for a while now. I am grateful for this site and also to the people who are selflessly contributing here with lots of information and regular updates.  My…"
May 20, 2020

Profile Information

Relationship Status:
In a Relationship
About Me:
I have a 9 year old girl who had lost the hair on her scalp and body. She still has a patch of hair left on her head. Its not falling anymore. She was very sick last year and after that she lost the hair. Is it telogen effluvium? Please help .
Do you have alopecia?
Telogen effluvium
Are you age 18 or older?
No - I am not 18 or older

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