outforawalk
  • Female
  • Fryeburg Maine
  • United States
Share on Facebook MySpace
  • Blog Posts
  • Discussions (21)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

outforawalk's Discussions

Evening Primrose Oil and other remedies that cause hair loss

Started Sep 12, 2021 0 Replies

For whatever it's worth, I came across this small piece of information in my reading.Does anyone here have extensive knowledge about evening primrose oil and other remedies that are contraindicated…Continue

Has anyone ever argued with you about your right to cover up your head?

Started this discussion. Last reply by Liz Nov 30, 2022. 5 Replies

It's been a while, but a couple of people have asked me why I "don't just go that way?"   They think I would look really cool with just a bald head.It's fine for them to have an opinion but not to…Continue

Has anyone had Dupilumab to treat Alopecia?

Started May 31, 2021 0 Replies

I searched on Clinical Trials.gov and found a study for Dupilumab.…Continue

Tags: Areata, Alopecia

Gifts Received

Gift

outforawalk has not received any gifts yet

Give a Gift

 

outforawalk's Page

Latest Activity

outforawalk commented on Cheryl, Co-founder's blog post The Secret to Shutting Down Alopecia Haters for Good – One Bold Approach Can Transform Your Confidence!
""Why do you have that thing over your head?" I tell them why. Then I hear them across the room. "She went into this thing about autoimmunity." Pretty soon I'll be investing in a prosthetic hair piece.   "
Jan 7
Liz replied to outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
"Thank you."
Nov 30, 2022
Liz replied to outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
"Thanks, that's great that you share your truth with your co-workers. I'm sure there's a level of freedom with that and I do have that with family and close friends. The thing with me is, my way of coping is to live in a state of…"
Nov 30, 2022
Cindie replied to outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
"I couldn't agree with you more. You are allowed to feel the way you feel without having to hear all the "commentary" from folks."
Nov 30, 2022
outforawalk replied to outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
"I'm sorry that someone made a spectacle of you in public.  I always told my co-workers about my disease because I always knew about the possibility of them finding out in a way that might be humiliating.    I gossiped with them…"
Nov 29, 2022
Liz replied to outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
"Your post resonates with me so much. I was approached at my job by a beautiful bald woman in her 20's. She asked me if I was wearing a wig and proudly admitted she knew I was because she was familiar with wigs. At the time I was wearing a…"
Nov 29, 2022
Liz liked outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
Nov 29, 2022
outforawalk commented on Cheryl, Co-founder's blog post 5 Things You Should Never Say to Someone With Alopecia
"In times past, when telling people about my disease, they've said "I would like to see you naked." This gives me a weird feeling like I'm trying to keep the peace with someone who sees me as an object and it's really kind of…"
Nov 29, 2022
outforawalk commented on Cheryl, Co-founder's blog post 'I had my breasts removed to avoid cancer, and I won't have them rebuilt': Woman, 29, with alopecia, reveals why she refused a reconstruction
"If I was in this situation I would have done done the same thing.    I resent being treated like an oddity and a curiosity.   Some insensitive people have told me, "I would like to see you naked" when I've talked…"
Nov 27, 2022
outforawalk replied to Cheryl, Co-founder's discussion Alopecia sufferer rubbed onion on scalp in bid for hair growth - Crazy or try anything once?
"I would just keep on watching and waiting for a cure.    Thanks for teaching us what does not work."
Nov 22, 2022
outforawalk commented on Cheryl, Co-founder's blog post Alopecia Areata Universalis Precipitated by SARS-CoV-2 Vaccine
"I had the Covid Vaccines with no adverse reactions.   I already had alopecia before them."
Sep 11, 2022
outforawalk replied to Kylees Mama's discussion Waiting to treat alopecia
"I have a chance to get Dupixent and have wondered if it would put my alopecia into remission. Then I read that it can cause a stroke and didn't know if I should be concerned or not. My question is that if it causes strokes, then what types…"
Aug 25, 2022
outforawalk liked outforawalk's discussion Evening Primrose Oil and other remedies that cause hair loss
Aug 25, 2022
outforawalk replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I've been following this thread for a while and wanted to research these drugs more before trying any.  Most drugs and other remedies have contraindications that I'm not up to date on.   The last time I had any regrowth of scalp…"
May 29, 2022
outforawalk posted a discussion

Evening Primrose Oil and other remedies that cause hair loss

For whatever it's worth, I came across this small piece of information in my reading.Does anyone here have extensive knowledge about evening primrose oil and other remedies that are contraindicated for those of us with hair loss?In times past, I have learned that any remedy that gets your immune system working has to be avoided.   See More
Sep 27, 2021
AloneArchitect liked outforawalk's discussion Has anyone ever argued with you about your right to cover up your head?
Sep 24, 2021

Profile Information

Relationship Status:
Single
About Me:
I like climbing mountains, biking, swimming, singing, piano, violin, guitar, poetry and sewing.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall

You need to be a member of Alopecia World to add comments!

Join Alopecia World

  • No comments yet!
 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service