Well, so much for Della getting through the first few days with no complications. Yesterday during recess a little boy took Della's hat and glasses and threw them on the ground. Then, when Della tried to get them back, he grabbed them and ran off. Even though my twins are in different classes, Angel chased him and tried to get them back for her. I guess even some of the girls that she plays with tried to get them back as well. This is all new to her so she didn't know what to do. When the bell… Continue

Well, today is day 5 for Della and Angel's Kindergarten career. I have to say they have enjoyed almost every moment thus far. Although, Della had been coming home after school telling me things that I haven't heard too frequently. She said she wanted her hair to grow back.



Since the teacher's home visit before school began we have talked about alopecia and we have told her just about everything that I know about it. She was welcoming and warm to Della and agreed to talk about it if… Continue

Well, I AM RJ posted a forum called "What has alopecia done for you?" I wanted to read the responses, and well just got down.Everyone seemed strengthened for it and strong. So, I started thinking "what has alopecia done for me?" My answer, nothing. It has made my daughter's life such a struggle so far, and I am not looking forward to the future with all of the frustrations to come with teasing and dating. I don't know what to do. I am so upset tonight with the thoughts that this disease has… Continue

It's been three days and she isn't liking her wig much anymore. It is really bothering her that the hair is always in her face. She wants the hair but it's just too much for her. She can't get past that. I don't know what to do. I want to protect her, and I love her with out it, but she is uncomfortable in her own skin, and behind this mess of hair. She was crying to me today when she put it on after I washed it, again. She misses being able to put hair ties in her hair, and wearing a pony… Continue

To my surprise she loves it, and I miss her. I was so used to seeing her face. I posted her new pictures. I think it is too thick. HAHA first I complain about her not having enough hair and now it's too much. I am a picky, picky person.

So, we received the finally clips and wig tape for my daughter's wig. Now, we are just waiting until tomorrow to get her wig styled. She is so excited, and so am I. It took a lot to decide on the wig route, and now that it's here we are barely able to sit still. I think this route is going to be great, because regardless of what happens, she can feel confident in her wig, until she is ready to take it off. I hope that that day comes where she is not intimidated by others, or her self. I think… Continue

It's March rigth now, and my twins are going to begin Knidergarten in August. I'm a stay at home mom, so they don't have a class or close peers right now, and I am completely nervous about Della beginning kindergarten. I don't want her to be teased. I have thought hard a trough about a wig, and finally we have decided to get her one, for the time being anyways. We do the styling on Thursday, and she is really excited, I am just not sure if I can handle it. All of the care and maintenance of a… Continue