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Oh dear.
It's 10:15am and I'm sat here debating with myself whether to get a shower because the amount of hair that comes out in the shower scares me. And it's annoying because the bar of soap gets covered in hair and then I have to pick it all off so that I can wash myself. No one knows how much hair comes out of my head. My Dad says it's coming out just as it always has done. Doesn't he realise how thin my hair looks? Can't he see there's not much hair at the back of my head? That Doctor is silly too. She says I'm not going to go bald because people my age hardly ever do. Doesn't she know that Alopecia is most common in teenagers and young people? I don't trust that Doctor anyway. She told my Mum to stop being silly and worrying over a little headache. Turned out it was Brain Cancer. Anyway, I'm going back to the doctor. She thought my hair was coming out because I'm low in iron. I'm only slightly low in iron though. Wouldn't you have to be seriously Anemic for hair to fall because of iron deficiency? I know I'm not low iron anymore because (eurghh this is disgusting but) when I go to the loo my er... excrement (lol) is black/grey which is a sign of high iron levels. I'm really annoyed with myself because I can't stop thinking about loosing my hair. I don't want to think about it but I can't help it. I'm just a worrier, which sooo doesn't help the situation. Dad tells me to stop worrying about it. How can I when there's hair everywhere I look? It's in the bath, in my bed, on my desk, on the computer, on the carpet, on my clothes and when I'm walking around I can see it fall. I even found a few strands in my underwear drawer. How did it get in there eh? It's haunting me and trying to get revenge for the hell I've caused it (straightening, colouring) lol. Anyway, byebye. x
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Comment by Debbi Fuller on October 9, 2008 at 7:30pm
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Hi Julie and Sophie,
Your situations are the most difficult because you are not totalis and you still have hair, but you don't know what will happen. For me, that was the MOST difficult part of losing my hair. Once it was gone, the answers were a lot easier. I HAD to find a great alternative. Right now, the best you can do is try not to focus on it all the time and do some research and plan for if and when you might need to get a wig/prosthesis. You are MUCH more important than your hair and you need to focus on that. Life does NOT end when/if you lose your hair. In fact, in some cases, it even gets better. It's not what happens TO you, it's how you deal with it. You have all of our support in the meantime.
Best,
Debbi
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Comment by Lee on October 10, 2008 at 9:17am
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I agree with Debbie...very well put!! Also...I would ditch that Dr!!
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Comment by kastababy on October 10, 2008 at 1:00pm
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Just pitching in my two cents.
If that "doctor" (and I'm using the term loosely, QUACK is more like it) can't make a distinction between brain cancer and alopecia, how can you reasonably expect the same person to distinguish between normal shedding and abnormal hair loss? Sounds like you need a new doctor!!!
On a more encoraging note, even though I never experienced my hair falling out in clumps at any time when I lost my own hair, I can see where that would be a very terrifying thing, and my heart really goes out to you. My heart goes out to your parents too, because I know they must hurt for you, and maybe they just don't know how to reassure you in the way you need to be reassured. Just know that we are all here for you and your folks, and here are lots of big hugs coming your way!!! :)
Stay strong, and remember we are all thinking of you!
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