Hi everyone, I should clarify what I wrote in my previous blog. I got way ahead of myself and skipped over details that I feel it is only right to share with you. The Alopecia Registry is not directly researching for a cure. They are only data collecting at this point. I feel, however, that without participation, no progress can be made in our cause. And that progress can possibly lead to a cure.

I spoke with my rep at MD Anderson today. She stated that answers I provide on their questionnaire may provide enough convincing evidence of medical necessity to lobby insurance companies to begin covering the cost of wigs. I feel very hopeful that SOMEONE is doing SOMETHING to help us.

A small flame can start a raging fire.