Week 2 since I shaved. Life goes on. What was once considered change is now the accepted norm. Yet, the thought still lingers…how much longer will this continue? The German philosopher Friedrich Nietzsche once penned "If we have our own why of life, we can bear almost any how." The ‘how’ is self evident…my ‘why’ is my two teenage children.

Good times or bad, I need be a positive role model for my children. I dare not wax impatient for fear of the unintentional lesson provided. Instead, I must stand fast in the day and save reservations for the privacy of the night. Nonetheless, we all have our days. Yesterday was a day that tried one’s resolve.

My youngest is in the midst of her final exams. This is a stressful time for all and her anxiety spills over into the family. She’ll do anything to avoid study, including tackling the task of cleaning her ferret. For those of you who haven’t had the pleasure, this chore is way down on the really want-to–do list. Add in a large, caffeinated soda, my fault for letting her order this with lunch, and my youngest daughter was bouncing off the walls.

Patience. She didn’t need the extra stress of me pressing her to study. Instead, I took a deep breath, then cleared a spot on the living room floor for her to work. She prefers to work on the floor as a forest of paper is far less formidable when spread out into small piles. We sat together, sorting through the papers in an attempt to organize the chaos. Enter the family cat and ferret. In a flash, the organized piles disappeared; a picture reminiscent of kids v. the just raked leaf pile on an autumn day. Back to square one. Patience. Patience.

The critters, drained from the flurry of activity, took a much appreciated breather in the afternoon sun. The papers, again sorted and organized, formed a small village on the carpet. Time to begin. The list of review topics was daunting; three full pages of single line headings. This would be no small task. We chanted the mantra…”How do you eat an elephant? One bite at a time.” And so we began.

More than four hours passed before the last topic was put to rest. My daughter smiled. She had eaten the elephant and lived to tell the tale. I helped her put her papers back into the binder, this time with a modicum of organization, the recently completed study sheets prominently placed in the front. She hugged me in thanks for my help, recognizing that she fairs better with a study buddy than alone. For me, any time spent with my daughter is precious.

Our day together had come to an end. She sat quietly in the car as the effects of the caffeine waned on our way to her Mother’s. Patience had paid off as the task at hand is complete…she is confident; she is ready and all accomplished without a scene.

I arrived home to a house which was all too still. The ferret was fast asleep in his hammock while the cat sat in the window soaking in the last of the sun's rays. The dinner dishes, left in lieu of studies, soaked in the sink. I busied myself cleaning the remnants of the day’s activities, thankful of the day’s lesson…patience.

The patches continue to grow. Somehow my mind reasoned that shaving my head would stop the progress. Wishful thinking but not far from true. As Yogi Berra once quipped, “It ain’t over until it’s over.” I’ve accepted that my hair may continue to fall out for some time. Re-growth, should I be so lucky, will then take many more months. Until that time I must take my own advice and be patient…

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Comment by Drew on June 19, 2008 at 1:00pm
I really enjoy reading your blogs Tony. It seems like you always have a good lesson to share with us. It also always seems to inspires me everytime in someway. I love the reference to the "How do you eat an elephant?" as one of my soccer coaches in college used that before every game.

I know what you mean about the patches still growing, as mine are still doing that. But I will admit that when the hair is shaved off, it is a lot harder to tell when you're losing more hair, which can be a blessing and a curse. It makes it nice to wake up and take a shower and not have the "rat" as you've mentioned before, but it also comes as a shock when you look and finally realize how much it's still progressing.

But I think you're right that this disease takes a lot of patience, and thank you for reminding me that. From this post and others in the past it sounds like you are a great father to your daughters, something I hope to be when I get older and settle down. I hope your daughter did well on her exam, it was only like a month ago when I was taking my college ones so I know what she's going through.
Comment by kastababy on June 20, 2008 at 11:54pm
Reading your blogs about spending time with your daughter reminds me of days past when my own father and I would study (he was in college at the same time as me), although it was more a case of me telling him how to do his work instead of me studying (it came a bit easier to me!) Needless to say, I miss him dearly every day and would give anything to have one more day with him!!

Reading your blogs also reminds me that I do have to be patient with others who are still adjusting to their new diagnoses and lives as alopecians. While everyone's minds are where they need to be, the same can't be said for our emotions. Nowhere is this more apparent than in the stories I've read of those of us who are shaving our heads for the first time. It reminds me of when I shaved my own head for the first time -- it was an adjustment, even for me.

Please continue to blog and post -- you have such a way with words and I find your postings both entertaining and enlightening, as do many of the people here in our community.

Rock on and have a great weekend!!! :)

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