Alopecia & things I can't experience with my daughter

my daughter is 2 yrs old and shes starting to wonder why her mommy does not have hair
i would love for her nd myself to play hair salon like i did with my mom
she gets upset that she cant do mommy hair and it is a lil
stressful trying to explain it to her i have had alopecia for a yr now
and it has knocking my self esteem down i really lost of words
on how i feel cause who wants to be a woman
nd bald

Views: 1156

Comment by butta on August 26, 2013 at 8:39am
i thank you all for your encouraging words yes it very hard i have a tattoo on my head
which mu daughter think is very cool and says i want a tattoo on my head like mommy
i do the tattoo thing with her often i buy 200 a $1 a pack nd put them all on her arms and legs
nd she says she a rockstar lol at times i feel like she is the reason i havent gaven up she gives
me hope
Comment by Sunflower25 on August 26, 2013 at 11:36am

I would totally get an inexpensive bright pink wig to wear just for these fun things. :)

Comment by Dena on August 26, 2013 at 1:53pm

I agree with Bonnie about doing your nails. That is one thing me and my daughter do together all the time. I was really missing fixing her hair in pretty styles. She had a dance recital that was coming up and I decided we would go have her nails done for it. She loved it. Now she is known as the child who always has her nails done. We do them at home, but on special occasions she gets to go get them done at the nail place. These days you can get really creative doing nails. Right now she is wearing some of the stick on kind that look like flowers. She loves it and often paints mine in some really interesting colors.

Comment by Nads on August 26, 2013 at 5:40pm
Just get a really pretty wig, like a red wig, and show her how to style it and make it pretty. That's what MY MOM did when SHE LOST HER HAIR. I have hereditary alopeicia and she told me that someday I would go through the same thing. Anyway, it's a good educational tool and your daughter can learn about alopecia just like I did, from MY mom.
Comment by Margaret Brennan on August 29, 2013 at 9:13pm

I am sorry to say this but I had a very negative reaction to your posting. I cannot remember what I told my kids about their having a mom with no hair. I had lost my hair finally totally at age 19 so that was just the way I was. I wore wigs but don't remember ever playing "hair" stuff with my kids. We read, we watch tv, we played Legos, we did crafts etc. we went shopping for clothes and food and were just happy to be together. I think you need to focus on the positives. You are probably a very caring person, someone someone would love to love. when I met my husband to be - I was scared to death about the hair stuff - when I decided we were probably going to be a lifetime relationship I had to tell him. when i did he just laughed. we would make a great pair he said - I have no front teeth and you have no hair. I knew then this was my guy.. there are lots of nice men out there.

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