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Hi All,
I would love for some input and recommendation.
- End of Sept notice quarter size patch.
- Received corticosteroid.
- Mid Dec, scalp became very itchy, flaky, and sore mainly on top center.
- Noticed the patch double in size.
- Following days, hair was coming out in clumps washing, dry combing, and even randomly.
- Went to another dermatologist on Christmas Eve and received corticosteroid shot and got blood work done just to ensure there was no underlying medical issue causing hair loss.
- Couple days later received the call and said I was positive for ANA.
- Went to my family doctor with the blood work report and got another blood work done for lupus.
- Two weeks later, the report came back and said I had inflammation but my doctor wasn't too concern that it was lupus. Wanted me to wait another two weeks to go for another lupus test.
- I went to a rheumatologist and worst experience. Waited two hours and out in less than 10 min. Basically, he reviewed both set of blood work and asked a few question and said I don't think you have arthritis or lupus and come back in a year for blood work. Really? Rude!
- I found another dermatologist that specializes in Alopecia Areata.
When she first looked at my scalp she said, "I suspect you may have discoid lupus". Therefore, she did a scalp biopsy.
So frustrating because all this waiting period is so crucial of not knowing what is actually wrong. Is it really Alopecia or medical issue causing the hair loss.
- Yesterday, I finally received my biopsy report. It was negative for discoid lupus. I then asked her if its Alopecia would it make it positive for ANA and she said no, that it shouldn't. She's now suggesting that I should go and test for systemic lupus and to consult with another
rheumatologist.
Has anyone have gone through similar with blood test?
At the moment my remaining hair is about 25% with scalp exposed. :(
Hi Aimee,
Thank you very much for your input. I agree that lupus have such a diverse range. I just got a repeat of my ANA last Friday and will get my result this weekend. I am thinking of seeing a endocrinologist and another rheumatologist as well. I actually don't have any other symptom except my palms were really itchy and inflamed when scratching. No pus though. It has healed since I started using a humidifier and on a gluten free diet.
Right after I saw the first rheumatologist who shoo me away, I started having pain in my arms and my knee has been painful off and on. I read about rheumatoid symptoms and I don't seem to display majority of it. I will keep you posted. Thank you for your insight. :)
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