Alopecia World
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Bald for 48 years!
Hello all,
I've decided to muster up the courage to write about my situation,,,Alopecia Universalis! Let me first start off with the good....I've been married for over 30 years and have 3 children, none have Alopecia - thank God. Let me say secondly, it has not been easy. I first started losing my hair at age 8. I am now 55. My hair have never come back. My elementary and teen years were the worst. Thought sometimes of committing suicide. It is my faith in God that I didn't I am strong! I decided at an early age, don't know when, but I was NOT going to let Alopecia dictate my happiness, even in my darkest days. I wear a wig all the time. I have been masquerading since a young girl. I am good at it now. It is tough in some ways, but you know what? GOD IS GOOD! I could not have asked for a better husband. I think this is in part because I was determined as a young girl not to let Alopecia run me. I am going to run it - point blank. If my hair wouldn't come back, then I would do whatever it takes to live as normal a life as possible. That is what I have done and it has worked for me. For all those who suffer with Alopecia, stay strong - live and enjoy your life. Make the best of what God has given us. This is my first time ever opening up. These types of forums were not available when I was young. This has been theraputic.
I've decided to muster up the courage to write about my situation,,,Alopecia Universalis! Let me first start off with the good....I've been married for over 30 years and have 3 children, none have Alopecia - thank God. Let me say secondly, it has not been easy. I first started losing my hair at age 8. I am now 55. My hair have never come back. My elementary and teen years were the worst. Thought sometimes of committing suicide. It is my faith in God that I didn't I am strong! I decided at an early age, don't know when, but I was NOT going to let Alopecia dictate my happiness, even in my darkest days. I wear a wig all the time. I have been masquerading since a young girl. I am good at it now. It is tough in some ways, but you know what? GOD IS GOOD! I could not have asked for a better husband. I think this is in part because I was determined as a young girl not to let Alopecia run me. I am going to run it - point blank. If my hair wouldn't come back, then I would do whatever it takes to live as normal a life as possible. That is what I have done and it has worked for me. For all those who suffer with Alopecia, stay strong - live and enjoy your life. Make the best of what God has given us. This is my first time ever opening up. These types of forums were not available when I was young. This has been theraputic.
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Comment by Galena on February 7, 2010 at 4:27pm
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Thank you for sharing your story j! I developed this condition at 44 years old. Unlike the amazing resilience that you've developed over a lifetime, I've had to accept a new self image in middle age. However, like you I'm also married to a great man and I have 3 children who don't have alopecia. I'm testing the waters of being my natural self--- bald most of the time. A bald woman is a loaded visual for most folks, but I pray that if more women step out like me, the stigma associated with alopecia will lessen for women as it has for men. You were not masquerading if you felt secure wearing a wig; I wear a head covering at work.
Again thank you for sharing your story. There is so much we can learn from one another that builds our courage and community.
~G
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Comment by Mark S. Hansen on February 7, 2010 at 5:52pm
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Hi. My name is Mark. I am single, never married, and have had alopecia univseralis, no hair anywhere, for about 45 years. Mine started to fall out when I was about 8 too. Finally lost it all when I was about 15. junior high school years were the worst, what patches of hair I did have left for a while was ripped out a few times by bullies, still remember their faces. I wore a wig for about 35 years (did not help my social life at all) and finally took it off about 6 years ago. Now I wear a baseball cap everywhere, except in the shower. some times I am torn between how much I let this condition ruin my life,never had a girlfriend or a relationship ever, others have done so much more with there lives with worse problems. And or how much it was ruined and in some way still continues to be ruined, looks I get every day, etc, by others. One thing makes all the difference in the world, that you found someone who loves you fopr who you are and what you look like. That is priceless. If I could ever find that I would not care if my hair never came back, even if I had the power to wish it back. It is wonderful that we have a place like this to come to where others understand us and accept us. But its also a shame, that the rest of society cannot be as tolerable. thanks
mark.
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Hello Mark,
Each of us deal with alopecia universalis in our own way. Even though others have the same or similar issues on this website, we still have our own very individual experiences that can oftentimes be traumatizing and the aftermath of that can be rough. Case in point, I have had similar situations from when I was young of teasing. As we all know kids can be cruel. I think as an adult it impeded me in many ways of some things I could have done. But get this, even when there were times when I thought about ending it, somehow as I mentioned earlier I mustered up the strength to keep going and I tried my best to live as normal a life as possible. We have to stay strong. You have to approach women, ask them out on a date. You might be surprised that people are more open than you think. Focus on your inner beauty - the good in you. I am sure you are a wonderful person deserving of love. I believe in my heart it is out there for you. btw: I know a man who has AU and has a wife! So.....go out there and get yours! :) J
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