I have just become a member of Alopecia World and am really pleased to have the chance to communicate with others affected by this condition. I have lost about 50% of my hair over a 4 year period since being diagnosed with Lichen Planopilaris/Frontal Fibrosing Alopecia and because my hair is curly I have been able to disguise the loss to some extent but this is getting harder to achieve.  My head can become very tender and irritated and I wonder if anyone else has this condition and how they have managed with the difficult search for wigs and hair-pieces that do not irritate an already sensitive scalp.  I also wondered if anyone was attending the Cicatricial Alopecia Conference in Chicago in April as I am attending and it would be good to meet up.  I live in the UK but visit Vancouver at least twice a year.  I would appreciate any help and advice and would also be very happy to try and give support to others who are managing the stress and anxiety of this condition.

Margaret