Comment by Tracy on February 6, 2009 at 7:14pm

I have already just like you said!! I have alos been working with the Paper, TV stations and a person who owns a wig shop in Winnipeg. So Im trying really hard and if it all works out then hopefully we will form a support group for her.

Comment by Carrie on February 8, 2009 at 2:06pm

Yes, won't it be nice when there are much more available forms of support for these Canadian children. Obviously, yet another issue that has no borders....

Comment by Frank on February 16, 2009 at 6:40am

Tracy,

I have had au since I was 5 years old and I absolutely wish that I had someone to talk with that understood what I was going through. You are absolutely doing the right thing Tracy, so don't be frustrated.

Why not use this site a little more? There are so many people here that either have au or support someone that does. There have to be other children on here your daughter's age that she can chat with. Its not a one on one meeting but it does have its advantages. One of which that is that it might actually make it easier to talk about her alopecia. As odd as it may seem, talking about your alopecia can be difficult, even with another person that has alopecia. Its awkward at that age. Chatting online with another girl her age (maybe even a little older) may make things easier in the short term until you can find someone in your area. This site would be a great place to find her a big sister or two. I know that having a big brother with alopecia would have been awesome.

There is nothing that your daughter will not be able to do as she grows, however she will need someone to talk with about her alopecia. There are definitely different stages of life where having someone to talk with that can relate to her will be helpful. Give yourself credit for recognizing that your daughter would benefit from meeting others that have alopecia. My parents were pretty awesome but they missed the fact that I needed someone to talk with. Not just when I first got it, but as I grew up as well.

Frank

Comment by Tracy on February 16, 2009 at 9:43am

I know, its still frustrating you know. And Im still in the anger stage especially when I look back at her pictures, just a year ago her hair was full and down to her bum, blonde thick just perfect shiuny soft every woman's dream hair... go figure this happened!

She has made some pen pals off here, so thats good. And I have help from a few dermatology offices and a wig shop, several people are willing to help, its a matter of finding other kids in this area that have the same thing.

Thanks for your message!!!!!!!!!!!!

Comment by Tracy on February 17, 2009 at 9:35am

I do speak with Betsy and she has only 3 of us from Manitoba, and the ones who are here live a few hours drive away from me and are boys, and Britt wants to meet girls understandably. Ugh. But we will get there, Im working on forming my own group and so far so good.

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