Frontal fibrosing alopecia

By way of biopsy, I was diagnosed with Frontal Fibrosing Alopecia in mid Feb. 2016. The timing of the study and my home location were such that I was able to volunteer for a clinical assessment on Feb. 25th at the National Institute of Health Dermatology Grand Rounds in Bethesda, MD. Anywhere from 50-75 doctors examined my scalp and provided their consolidated opinion and treatment. My dermatologist reported the findings to me and we began the following treatment: 1) C-Tacrolimus 0.1% solution. Apply 2 ML to scalp twice daily. 2) Finasteride 5MG. Take ½ tablet by mouth daily. 3) Ciclopirox Shampoo 1% - leave on 3 min. when shampooing hair. I’ve had very good results. No further loss of hairline and regrowth around the temple and over ear. I had my four-month check-up with the dermatologist today, June 18, 2016, who was highly pleased with the results and told me that she had a recent flood of patients with the same diagnosis who also have seen positive results from this combined treatment. For more information you or your dermatologist might contact the below reference. Good luck! Londa Hathaway, FNP-BC, Dermatology Consult Service, OP-13, National Cancer Institute, National Institutes of Health, Bethesda, MD, Office: 301-402-7454,FAX: 301-402-4270, Hathaway@nih.gov

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Comment by rose on July 19, 2016 at 1:12pm

I'm happy this treatment worked for you.I have CC Alopecia and was told My hairloss was permanent.I've tried various treatments and no success.I guess they were right.I'm not giving up yet,by prayer and meditation I believe the answers will be giving to me soon.

Comment by patricia on July 20, 2016 at 1:36pm

Hi I was diagnosed with FFA two years ago and placed on Plaquinal, minoxidil, and local steroid lotion. despite all i have continued to loose more and more hair. How are you getting on with Finasteride/ lotion. I am seeing a hair loss specialist next week. Have you ever tried Laser treatment. Tks

Comment by Ana_Brazil on July 20, 2016 at 5:04pm

Hi Tress, I contacted the hospital and below is the reply I got. Do you have a direct contact to your doctor, please?

Thank you!

Ana

---------- Forwarded message ----------
From: Hathaway, Londa (NIH/NCI) [E] <hathaway@mail.nih.gov>
Date: Wed, Jul 20, 2016 at 1:11 PM
Subject: RE: Frontal fibrosing alopecia - call for help for a Brazilian-American living in Brazil at the moment
To: Ana Verissimo

Dear Ms. Verissimo,

We do not have any current protocols for patients with frontal fibrosing  alopecia.

Thank you for your interest.

Londa

Comment by Ana_Brazil on August 29, 2016 at 7:34pm

Tress, does this makes sense to you, please? Is this the correct doctor? Thank you!

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