Comment by bree on June 11, 2015 at 2:09am

hi Deejay-u know if i am you-i will let a doctor write a report,i wonder how people can be so nasty-yes i know rules is rules,but still-don't they consider other peoples feelings,not even to ask you why you wear it-the type of communication especially in such a place-they can't just give u fines-u have the right to stand up for u-u know-i also have AA,people stare at me-i felt just like you-for me-its worse cos im a woman-i have the whole pattern,i just decided this week-from now on,im wearing my hair up-high,think wot u want to think,who u to judge-the true Judge(God) even died for me thats how much He loves me now wu are others to judge me!

Comment by Momteyro on June 11, 2015 at 3:41am

I mean no disrespect here, but why did you not stand up for your self?

Comment by Pam D. on June 11, 2015 at 6:34am

I'm still wondering if DJ told them he had no hair, or just refused to take his hat off. Refusing could put people on the defense, where explaining the problem might make them more sympathetic. Sometimes how a situation is handled makes all the difference.

Comment by Cindie on June 11, 2015 at 8:30am

Although I shave my head, and like it, I wear wigs to cut down on all the bullshit!

Comment by Lori-akaMimi on June 11, 2015 at 9:33am

Dear Debra (twin mom), My 6yr old granddaughter is AU also. Before the start of the school year, I spoke to the teacher, principal & counselor. Her school also has a "no hats" rule, but they did, indeed, make an exception. They made sure that all teachers & staff were informed. As it turns out, my Babygirl is perfectly comfortable going with no hat or wig :-)  You can also contact the National Alopecia Areata Foundation (naaf.org). They will gladly send you a 'School Kit' with information, pamphlets & a DVD. They will also intercede on your child's behalf by contacting the school directly, if necessary.

Comment by Deejay on June 11, 2015 at 9:35am

Thanks for the replies people. Knowing how many of you have challenged similar situations makes me feel so not alone.

I'm getting a feeling that some truly don't get the idea or the full picture of the scanerio.

1: I am a WOMAN ! So being forced to go bald in public ( not a smooth bald but patchy bald) is a big deal to me.

2: I am in Atlanta,GA (Someone asked)

3: I was not confronted by a court clerk but a very hostile Police Officer that was drawing more attention to our conversation with every word I spoke. I don't know why he was so hostile but with the faces he kept making, he just couldn't phantom to save his life WHY i didn't immediately just remove the hat. I tried to to explain that it was not for fashion purposes and that it was for medical purposes. He raised his voice at me and that was enough for me to leave the room with about 20-30 eyes watching me. Someone said I wasn't standing up for myself. Maybe that's true. I had actually went to court to fight a traffic ticket. I had researched for over a month, gathered facts and information and was confident in going to stand up for myself there. Until my Alopecia came into question. Then yes. I lost all confidence . I just paid the $500 and everything i had been preparing for just went out the window. I just wanted to keep my dignity. 

Comment by Lori-akaMimi on June 11, 2015 at 9:51am

Hey, Deejay - I'm also from Metro-Atlanta, and I'm appalled! What happened to you in court is unacceptable. Period. I totally understand why you reacted the way you did at the time. But, maybe you can challenge this policy now. As others have suggested, try contacting the judge (or whomever else you think might be able to help). What have you got to lose by pursuing this?  At the very least, you will make someone aware of what happened. Also, you could seek guidance from naaf.org.

Comment by Kitty on June 11, 2015 at 1:11pm

sometimes if you explain what you have, they let you keep it.

Comment by Debra (twin mom) on June 11, 2015 at 1:26pm

Hi lori..... I actually inquired about the pakcet as well. And like your grand daughter...my boys are actually very comfortable going without a hat. Alex however has his limits of comfort. I have noticed that when we go certain places he likes to put his hood up. I have come to realize that those are times when his comfort level ha's dropped. I think that sometimes we make a bigger deal about it than they do.....at least speaking for the children. Thanks for your feedback :)

Comment by Lori-akaMimi on June 11, 2015 at 4:55pm

Debra - Glad to hear your boys are handling this so well! I spoke to the folks at school as a "just in case." It's always been her choice what - if anything - she wants to wear on her head. The only times I insist on a hat are weather related: when out in the sun & out in the cold. :-)

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