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Hit an all time low!
This is only my second time on alopecia world, but I need support more that anything! I was looking at a photo of me
in February and I had most of my hair then , now 4 months later I only have a few strands left. I wear a hat every day, and am going to see about getting a wig this week but its the last thing I want to do. I hope it will improve my confindence as I am usually so outgoing and such a sociable person.
I hope hoping for that 'miracle' cure and the trichologist thinks it will come back but may take its time too, my husband doesn't know what to say to me to help.
Does anyone have any good and exciting news out there?
in February and I had most of my hair then , now 4 months later I only have a few strands left. I wear a hat every day, and am going to see about getting a wig this week but its the last thing I want to do. I hope it will improve my confindence as I am usually so outgoing and such a sociable person.
I hope hoping for that 'miracle' cure and the trichologist thinks it will come back but may take its time too, my husband doesn't know what to say to me to help.
Does anyone have any good and exciting news out there?
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Comment by Lori Van Decker on June 22, 2009 at 10:53am
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Hi Kathryn,
I think that most of us know exactly where you are coming from because we've been there. Acceptance of what you cannot change is difficult. It took me over 30 years of growing, losing, regrowing, and then just losing all of it to really accept that "I am not my hair." The good news is that acceptance will come! Give yourself time; don't be too hard on yourself. Alopecia is unpredictable. It's okay to hope for the "miracle cure," and if your hair does come back, enjoy every moment that you have it. If it doesn't or if it goes again, work on what's in your power to control. Use this site and your friends here whenever you need to vent! Take care!
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Comment by panuelo girl on June 22, 2009 at 4:53pm
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Oh dear. I'm so sorry you are struggling. I know what that's like. I struggled with self acceptance for YEARS, related to my hair loss, and now that I'm finally there, and I am okay with having alopecia areata, what should happen but the rest of my scalp hairs all fell out, and I'm struggling again, trying to accept alopecia totalis. It's a process. The good news? There are a lot of us. There are a lot of supportive people out there who love us. There are a lot better products out there and a lot of people to help you find those products. 20, 30, 40 years ago, I'm not sure that was the case. I hope you feel better soon!
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Aimee, I was wondering how you did on Father's Day! So I'm glad to get a report but sad that you broke into tears. Good for you for explaining it though. In the beginning, I wouldn't do that b/c I didn't want to burst into tears. I'm really proud of you for that! And happy you like your wig.
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Comment by kathryn ccombs on September 20, 2010 at 4:39pm
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HI Its kathryn here again just over a year later! I am much more confident since I have started wearing my wigs and my hear is coming back in patches, its strange though, I have a big long spikey bit of dark about 10 hairs and here and there a few fair hairs, so it could take years yet for it to come back.
My doctor has put me on methatrexate as I have psoratic athritis in my hands so they think it is my immune system causing it all. So I need to have blood tests every two weeks to check my liver is ok with the chemo drug! Hopefully things will keep improving. Thanks everyone!
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