Comment by Angelynds on September 1, 2016 at 7:18am

So sorry to hear this. My daughter is universailis and in 3rd grade. Just this week her and i did a talk to her school about alopecia. It was the best thing we could do. The kid were engaged, caring and asked great questions. When kids understand what isgoig on they are less likely to make fun. ThankGod my daughter has not been bullied. Education is key! We are having a hat day at school to to show support for my daughter. We are a private school so no hats allowed normally. Get support from the school and dont be afraid to educate!! Good luck to you, let me kmow if you have specific questions!!

Comment by Cindie on September 1, 2016 at 7:44am

If it were my daughter, I would cyber school or homeschool her.  I understand what you are saying about "withdrawing her from social interaction", but this is negative social interaction, and is not good for her mental health, even with counseling.  I say this based on experiences with my own daughter, now 39, who was bullied for other reasons as a child.  We talk about this often, now that she is an adult, and had cyber school and homeschool existed back then, both would have been a better alternative.  There are other ways that cyber schooled and home schooled children get "positive social interaction".  Yes, I strongly believe in educating others about this condition, but there will always be that troublesome segment of people who will reject that education, believe what they want to believe about alopecia, and bully.  This I know as a 63 year old adult female with alopecia.  Your duty is to protect your child while seeing that she gets her education, first.  Educating the bullies comes second.

Comment by Kelsey on September 1, 2016 at 7:53am

I have a 20 year daughter that was bullied her entire time in public school.  It ended up causing her so much pain and did major damage to her self esteem.  I finally pulled her from public school at the beginning of her senior year when she was pushed down a flight of stairs with kids screaming watch cue ball roll...  This was the best decision I have ever made.  I never hide her A.U. from anyone raised her to be proud of who she was and how God made her.  IF I had it to do over again I would have pulled her from public school long before I did.  She was an extremely social kid in the beginning but as time went on she withdrew so severely that I was afraid we would lose her.  Please learn from my mistakes teach her she is beautiful and find other means to socialize her but get her out of public school  there are some extremely good online schools.  We used the one offered via our school system..  Also please go to the foundation and look up a booklet WE wrote called My Cousin Kelsey..  It teaches in child language what it is she has and that no one can catch it.  If you need a copy hit me up on personal email and I will be happy to share with you.  We printed 100's of copies and past them out at her school once in kindergarten and once in middle school.  

Concerned mom

Comment by Barbara on September 1, 2016 at 8:05am

I am very sorry. I don't have kids and didn't have AU until a couple of years ago. Now it's AT. I was bullied in school because of my weight. I didn't want to go. I was sick to my stomach every day. Bullying needs to be stopped. I'm an adult and I won't go out on my front porch without my wig. I can only imagine what it's like for a child. I wish you much luck with this. It's hard to teach her self esteem when kids are so cruel. If she could get the attitude that she is awesome and beautiful and what anyone else says or thinks doesn't really matter.

Comment by Oneida on September 1, 2016 at 8:19am

Education is a must even if you include other visable topics that would help other children

Comment by Dorothy on September 1, 2016 at 8:46am

My heart is breaking for your daughter.  In short you have to do what is best for her, give it a try to teach the classmates about her, if that does not work then do not waste anytime in pulling her out and homeschooling her or if you can afford it private school.  While my son does not have AU, or any reasons to be bullied, he was bullied horribly in school and now at age 24 we the family are still dealing with his problems as he is a very anti social young man, he will not even attend family functions with family other than close uncles (my two brothers, no grandparents are living).  He will not seek treatment and at his age I can not force him.  In short, the damage is being done now, you would rather make sure your child has a few good social contacts rather than multiple bad.  Just my opinion.

PS, I did not develop AU until I was out of school.

Comment by Hairagain on September 1, 2016 at 9:15am

Very sorry you baby has to experience such a horrible situation as school bulling. At my office i help 2 girls ages 9 one of them has alopecia areata and the other Trichotillomania , me and the parents came with the idea of create awareness in school by me going to the class room and talk to the kids about Alopecia and that is not contagious. Explain every child that can happen to them at any age i took some pictures and that is not nice at all to make fun of or talk about it we agree with the principal to suspend anyone that was catch making fun of them .

I had to make sure this issue was gonna get taking care of ones and for all i love those girls .

i have a foundation called Dannette's Angels and i help Girls  with Alopecia by giving them Hair Restoration services or a Cranial Prosthesis for Free . We also offer support by meeting with a psychologist ones every 2 weeks , i hope this works for you my friend.  

Comment by Momoko on September 1, 2016 at 9:16am

I was bullied in elementary school. These kids take such careless action because they believe they are majority, normal and justice. Why don't you let your daughter meet other alopecia children or adults? She will be able to know that she is not only one who is no hair and nothing  wrong. There was an 1 year older hairless girl  in same elementary and junior high school. But she was super perfect girl on study and exercise so that I couldn't share my pain with her. If I had shared my sadness with same hair less friends, I would have overcome difficulties. Not only your child but also you will be helped by their mothers.

Comment by Solange De Santis on September 1, 2016 at 9:54am

The National Alopecia Areata Foundation has some excellent resources, from booklets to videos, that can help explain alopecia to a school population. I have read that parents had great success asking the school if they can address the issue to the whole class or school. Good luck. 

Comment by Angelynds on September 1, 2016 at 9:57am

Check out childrens alopecia projext, CAP. They have camps for kids with alopecia all around the country. One in ohio in october. My daughter loves them. Def helps to meet kids like him or her.

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