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"I want to keep my alopecia"
Hi everyone,
This is my first time blogging. I just want to thank everyone for their kind comments towards my daughter. I just want to retell a conversation we had earlier regarding her alopecia. Amanda is 7 and has had AA since she was 4. She is never frustrated or disappointed by it. She just knows it has been a part of her life for the past 3 yrs. Well she celebrated her birthday a few days ago and when it came down for her to make a wish before blowing out her candles she didnt wish for her alopecia to go away like she always does. I asked her why she didnt mention it and she said that she wanted to keep her bald spots because she feels special with them. It brought a tear to my eye and I told her she was special no matter what. It just went on to teach me that it all boils down to how you feel about yourself and how you make the most of it. We are happy to have found Alopecia World when we needed it the most. She enjoys looking at everyones pics on their site and now feels good about her own hair. She knows she is not the only one. Thanks for listening.
Tracy
This is my first time blogging. I just want to thank everyone for their kind comments towards my daughter. I just want to retell a conversation we had earlier regarding her alopecia. Amanda is 7 and has had AA since she was 4. She is never frustrated or disappointed by it. She just knows it has been a part of her life for the past 3 yrs. Well she celebrated her birthday a few days ago and when it came down for her to make a wish before blowing out her candles she didnt wish for her alopecia to go away like she always does. I asked her why she didnt mention it and she said that she wanted to keep her bald spots because she feels special with them. It brought a tear to my eye and I told her she was special no matter what. It just went on to teach me that it all boils down to how you feel about yourself and how you make the most of it. We are happy to have found Alopecia World when we needed it the most. She enjoys looking at everyones pics on their site and now feels good about her own hair. She knows she is not the only one. Thanks for listening.
Tracy
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Comment by Deanna on January 2, 2010 at 8:33pm
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This is a great story...i only hope that i can raise my daughter to give her the confidence that she needs like you have done for yours!Thank you for adding me and welcoming me as well:)
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Comment by Kim Allen on February 13, 2010 at 9:50am
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thanks for including me in your journey ... Kid are just so amazing ! we are always teaching them new things, and lessons ...but some time its just best to listen! thanks again Kim
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Comment by Aprille Covert on March 29, 2010 at 12:24pm
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How AMAZING!! Abria was only diagnosed about 4 or 5 months ago. She has always had this bright personality. People notice HER before they notice what she looks like. Her hair has begun to grow back, but as you can see in my profile picture she wore this hat at Christmas time to cover this really large bald spot in the front of her hair. Our children show us so much with how they deal with things. She has never complained, she just educates her friends about it and she isn't made fun of. The strength our children have really takes me by surprise sometimes. How did we all get so lucky? .....Aprille
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Comment by Susan P aka DGADBS on June 17, 2010 at 12:10pm
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What a special little girl you have Tracy, thanks for sharing her touching story with us.
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Comment by Michelle Bollinger on July 25, 2010 at 10:29pm
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Thanks for adding me. I am new to Alopecia World.
You are beautiful little girl no matter what!! I have learned to accept alopecia & that this is how God made me. I do a very good job hiding mine. I started about 1 year ago getting steroid injections every 4 weeks and my hair has came in really good but as we all know, that is a very painful thing to have a needle pricked in your head about 50 times. Each time I go back, my dr. gets just as excited if not more than I do to see how much progress my hair has made which makes me happy that she cares that much about me!
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Comment by Sabina di Gennaro on July 29, 2010 at 2:28pm
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You know what Amanda, I'm new on this site and after my first positive comment on my picture with a wig on I felt so much better. And thought; oke there are more girls and woman like me and they all look very nice and beautifull so maybe its not so bad at all. Well, maybe not as beautifull as you, but that's because you are beautifull on the inside and outside!
Thank you for being my friend here (and say hi to youre mom) :) Sabina
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Comment by Julie Koch on August 3, 2010 at 5:55pm
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Your story brought tears to my eyes! What a special young lady indeed. I am so impressed by her and her outlook with her hair loss. If ONLY I had half her strength!
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Comment by Sandra Zadora on August 9, 2010 at 12:25pm
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As a support group leader, I hear all kinds of stories from parents of children with alopecia, some positive and some very sad. Your's is a wonderful example of how loving and supportive parents can help their children feel good about themselves and learn not to define themselves by the loss of their hair. Amanda is an amazing and beautiful little girl. Keep up the good work and thanks for sharing her story.
Sandra
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Comment by Sarah Schripsema on August 18, 2010 at 8:22pm
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I seriously have tears in my own eyes. What a wonderful girl you have and no doubt she will grow up to be a wonderful women.
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Comment by Christy Ingram on September 16, 2010 at 8:41pm
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Amazing truth & wisdom from one so young!
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