Hi - I have FFA, took years for the doctors to take it seriously.

 I have had the cortisones, NSAID , and minoxidil  and have had reactions to first two. Moon face, neuropathy.

The hair just keeps getting thinner and I am 59. 

I hate the itching - it never seems to actually stop.

It is spoiling so much in my day to day life, worst days being stressed days and the ones with flares.

I am healthy eater, do like wine, not much dairy but its there.

I might cope if the flares stopped. Prednisone works but feel out of body with it for a while.

I am thinking of just shaving it all off, and walking out.

 I will not do hair pieces and such, the itching will have me scratching and then I will look a mess. 

New look, new start. I am in shock as FFA has robbed me.

This is the future, worrying about hair - maybe get rid of the hair.

Anyone tried it?

Views: 143

Comment by Steve on August 9, 2015 at 1:02pm

Hi Gilli,

I am a 24 year old male and I have AT. I have also been on multiple prescription and I have had no luck so far. I got to the point similar to you where I was fed up with trying to keep my hair and try ways to make it look acceptable. Then I got to the point where I said "Stuff this" and I shaved it all off. It was a massive step for me and did take me some courage. However, it was strange to start with but I wanted to take control off my AT and stop it taking control off me. I am so glad I did it because it is honestly for me personally, a lot less hassle. 

I would recommend possible using Aleo Vera Gel to maybe stop irritation? When I shave my head it also gets a little irritated and the aloe vera gel works for me. I hope you found this reply a little helpful.

Comment by Gilli on August 9, 2015 at 1:10pm

Thank you mini05man. I see no drawback in a man shaving it off - its strong, determined and in control.

Why this doesnt apply to women stuns me, but we do it to ourselves.

I will try the aloe vera - the itching bugs me, wakes me up, and in company I feel like I have nits - or the scratching will make them think that.

I once dated an AT man, in our 20s. He was so nice, and funny, and so much character - but in those days, bald was not what it is today. Shame for him,

Thank you

Comment by Steve on August 9, 2015 at 3:03pm

Thank you for that, Gilli. It means a lot. It will be a truly inspiring moment if you decide to do it and you will also be an inspiration to other women. Hopefully you decide a path for you that will bring you a lot more ease and happiness. I really hope the Aloe Vera helps you or you find something that does.

Wow, you're ex partner sounds just like me. Haha. Thankfully bald is a lot more accepting in this day in age and I only hope it continues into the future for all.

Comment by Free on August 12, 2015 at 5:19pm
Hi Gilli
I am a woman that decided to go bald. I was wearing full lace wigs to hide my alopecia. It was very expensive to maintain. The worst part was my dependency. I was starting to feel in bondage to my hair and appearance. It was always my primary thought and concern. I would stock up on wigs being afraid to be without.
Then my soul within wouldn't let me rest. I started thinking It should be ok to be who I am. I got to the point that I wanted to go natural more than I wanted to hide under a wig.
I decided it was time May 2015. It is very liberating and empowering. I am still embracing myself in this journey. I am still adjusting to seeing myself like this. My suggestion is do what is best for you and what ever you decide you have my support from one woman to another.
Comment by Free on August 12, 2015 at 5:23pm
Oh Gilli I meant to tell you. I am 52.


You need to be a member of Alopecia World to add comments!

Join Alopecia World


Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2022   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service