Alopecia World
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Just To Talk
Ok this is the first time I've ever done this. So sorry for any misspellings and bad grammar. Sssssssoooooooooo sorry if its bad or something like that. OK well I just wanted to talk....what about? I got no idea. But I guess just talking about something is the best thing. So here I go.
Since I was about 18 months old (I am now 20 years old) I have been slowly over the years losing my hair. I have what is known as alopecia. Its not life threatening or anything like that I just have an over active immune system and I lost my hair..........all over my body. I did have hair when I was younger I would like to say that I went through stages of Alopecia. It first started out as Alopecia Areata (first stage) and I had that up to my freshman year of High School. During my freshman year my Alopecia turned into Alopecia Totallis (second stage) quickly. By the end of my freshman year I was completely bald. Then when I got to my senior year it change to Alopecia Universalis (third stage). And that is what I have now so good thing is I never have to shave. lol ^..>^ So I have been losing my hair since I was 18 months old and I'm some what ok with it. I have had about 10 to 12 regrowths of hair through out my life. I hear that is rare but I am not for sure. If someone could tell me if it is that would be great thank you!! ^..>^ Anyway back on topic. Do I wish I had a full head of hair? You bet I do more than anything in the world to be able to feel like a normal person and not some outcast. That would be the best thing in the world to feel. But then again no I dont. Why? Because what is hair but a washable mask. I mean it would be great to have hair because then I wouldn't get sunburn on my head in the summer. Or get head colds and Brain freeze (as I like to call it)in the winter. But for me my outlook on having hair is just something to hide behind when you don't want to face the world with your real self. Because, how can we be truthful to ourselves when we can't be truthful with other people. Plus its so much work fixing your hair and washing it every morning. And wigs for me are just wearable torcher device that are hot, itchy, and heavy. That and you have to put so much time, effort, and money into making sure it looks right. I mean come on if a person is going to judge you of you hair and looks and not on the great person you are. Then why do you care or want their approval. Because the only person who can say whether you look good or not is you. If you want to wear baggy pants with a shirt two times your size then do it!! If you want to paint your head all and any of the colors of the rainbow and more do it!! Or if you want to wear a skirt over your jeans and a shirt that looked like it came out of the 1960's or something like that. DO IT!!!! Because, come on, who cares what other people say. I sure as heck don't. I get weird looks and things said about me all the time and I pay no attention to them. I even laugh it off and keep smiling. I make jokes about myself not having hair to other people in order for them to feel that they don't have to worry about what they say. Hey I would rather have a "No Hair Day" then a "Bad Hair Day" any day. Plus half the people.....well more like almost all the people I meet think I have cancer or leukemia. When I do not. I would rather have the people come up to me and ask then just going around assuming things about me.
Ok well I think it is time I stopped talking and let you all get on with your lives. But, thanks for listening/reading this and comment on this if this has happened to you or someone you know. I would like to finaly talk to someone that knows what I have been through and not feel so alone anymore.
Well thanks again see you next time.
Bye *waves* ^..>^
Since I was about 18 months old (I am now 20 years old) I have been slowly over the years losing my hair. I have what is known as alopecia. Its not life threatening or anything like that I just have an over active immune system and I lost my hair..........all over my body. I did have hair when I was younger I would like to say that I went through stages of Alopecia. It first started out as Alopecia Areata (first stage) and I had that up to my freshman year of High School. During my freshman year my Alopecia turned into Alopecia Totallis (second stage) quickly. By the end of my freshman year I was completely bald. Then when I got to my senior year it change to Alopecia Universalis (third stage). And that is what I have now so good thing is I never have to shave. lol ^..>^ So I have been losing my hair since I was 18 months old and I'm some what ok with it. I have had about 10 to 12 regrowths of hair through out my life. I hear that is rare but I am not for sure. If someone could tell me if it is that would be great thank you!! ^..>^ Anyway back on topic. Do I wish I had a full head of hair? You bet I do more than anything in the world to be able to feel like a normal person and not some outcast. That would be the best thing in the world to feel. But then again no I dont. Why? Because what is hair but a washable mask. I mean it would be great to have hair because then I wouldn't get sunburn on my head in the summer. Or get head colds and Brain freeze (as I like to call it)in the winter. But for me my outlook on having hair is just something to hide behind when you don't want to face the world with your real self. Because, how can we be truthful to ourselves when we can't be truthful with other people. Plus its so much work fixing your hair and washing it every morning. And wigs for me are just wearable torcher device that are hot, itchy, and heavy. That and you have to put so much time, effort, and money into making sure it looks right. I mean come on if a person is going to judge you of you hair and looks and not on the great person you are. Then why do you care or want their approval. Because the only person who can say whether you look good or not is you. If you want to wear baggy pants with a shirt two times your size then do it!! If you want to paint your head all and any of the colors of the rainbow and more do it!! Or if you want to wear a skirt over your jeans and a shirt that looked like it came out of the 1960's or something like that. DO IT!!!! Because, come on, who cares what other people say. I sure as heck don't. I get weird looks and things said about me all the time and I pay no attention to them. I even laugh it off and keep smiling. I make jokes about myself not having hair to other people in order for them to feel that they don't have to worry about what they say. Hey I would rather have a "No Hair Day" then a "Bad Hair Day" any day. Plus half the people.....well more like almost all the people I meet think I have cancer or leukemia. When I do not. I would rather have the people come up to me and ask then just going around assuming things about me.
Ok well I think it is time I stopped talking and let you all get on with your lives. But, thanks for listening/reading this and comment on this if this has happened to you or someone you know. I would like to finaly talk to someone that knows what I have been through and not feel so alone anymore.
Well thanks again see you next time.
Bye *waves* ^..>^
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Comment by Natalie on June 28, 2010 at 10:23am
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Hi Samantha! I also have alopecia universalis, and I feel the same way about not caring what people think of me. If they don't like my bald head, then they shouldn't look! haha! I also get a lot of "pity stares," because people think I am sick. Sometimes it annoys me, but mostly I realize that they mean well. Anyway, isn't it great not to have to shave? I think that is one of my favorite things about alopecia! You are certainly not alone - they are lots of us baldies out there :) Keep on with the positive attitude - you are a role model of strength for other women out there like us!
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Comment by Samantha White on June 28, 2010 at 2:09pm
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Thank you Natalie and I'm gald to know that someone else has my kind of views on Alopecia. I kind of found a way with the kids at my high school(when I went to high school) to get them to have fun with my lack of hair. On the days of school that landed on a holiday I would let the younger kids paint my head. So like on Valentine's day I would let them paint hearts or on St. Patrick's day they would paint clovers and pots of gold. ^..>^ It was fun and the younger kids loved it.
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Comment by Coleen on June 28, 2010 at 9:54pm
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Hi Samantha, I also have alopecia universalis, I didnt develop it until I was 42 years old, and I feel the same way if people dont like me for me, then oh well. I do not wear a wig, I think they would be annoying and hot, I usually wear a bandana or hat or go bald. I love all the money I save on shampoo and condition and hair cuts and all that stuff. I also get the "pity looks", but the funniest is when kids ask their parents if I am a pirate, I can't help but laugh at that one. I have a very supportive and lovely family and friends, so that helps, but since I developed this, I have always had a very positive attitude about it all. So glad you talked on here.
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