Alopecia World
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Kia Ora Koutou
Hello everybody, Just thought it might be a nice idea to write a little someting'.. My computer skills aren't too savy.. And life has been pretty busy.. But I do apologize for my lack of input..
Sooooo its been some time now since the freakesh morning 'something close to a horror movie.. when i discovered i had an obvious looking bald spot apon my head.. Almost a year now..And time has definatley helped the subtle sense of acceptance to settle in..
I am very blessed to have such amazingly loving caring and understanding people around me to give me strength and support..
My partner has been the wind beneath my wings he has helped me immensely in these traumatic times and been there to catch me when i fall..
My alopecia started as AA however due to the fact that my eyebrows are almost completely gone now me eyelashes are disapearing rapidly I figure it is moving on to AU.... stink
During this time i have spent a ridiculous amount of money trying out different alternative remedy's therapy's mentalities but unfortunatley to no avail.. I had my hair tested before i shaved all my hair which was pretty much one month into it.. The results returned with extreamly high levels of arscenic lead and mercury.. They were quick to decide that the heavy metals were a prime cause of triggering the alopecia..
I have lived quite a wholesome lifestyle most of my life.. I have been conscience of what i eat and and very particular about using natural products in respect to my body and the earth, when i did have hair I let it be, never used hair dye or even went to hair dressers.. I kept it natty...Natural...Hmmm Maybe i didnt give it enough attention! My hair was long and lushous and had become a very big part of me and my image, I just let it be..
Any who This is my reality now and still i am just letting it be.. I will continue to get rid of these unwanted heavy metals, I find it hard to stick to the routines of different treatments.. but endevour to rid my body of these metals. as my witch doctor reminded me it may just be a blessing in disguise or i may have never discovered the heavy metals within me..
I have been wearing scalfs on my head since i shaved, They have been comforting to me as i was always used to the weight of my dreads/hair.. Only three times have i worn a wig out.. agent 99 they call me.. It was great! so may people didnt recognise me..
I would like to think i will feel comfortable wearing wigs on a daily basis... or just when ever i feel like it without feeling a bit uncomfortable with thoughts of feeling fake.. No offense to those that wear wigs.. I envy you! I just havn't managed to get my head around it.. However I want to, because i love how they can change your apperance just like that... I guess when ive lived with this condition for just a bit longer and found a bit more acceptance i might just have to start by buying some more wigs..
O and to mention going out in public with an almost completely bald slightly patchy head... Ahhh mad respect to those that do!!! I will get there again one day and feel fine about it... I must say I am glad summer is over now! I was dreading it before its arrival and am pissed off a bit for allowing this condition to prevent me from living life to the fullest.. I am striving to do what ever my soul desires with no restrictions in regards to lack of hair... Then maybe I may learn a vital key to open doorways to possibilites un-imaginable!
Thank you to all that felt to read this blog..
I wish for all Alopecians to find the strength and courage to rise above all mind limitations that prevent us from living to our full potential..
And I hope that we may find peace within our curious minds as to why we have been chosen.. embrace life, breathe deep love oneself unconditionally respect and enjoy!!
Ti Hei Mauri Ora
P.s.. Can any one please explain to me how to change the profile picture?? tanku!! Xxx that was the old me..teehee
Sooooo its been some time now since the freakesh morning 'something close to a horror movie.. when i discovered i had an obvious looking bald spot apon my head.. Almost a year now..And time has definatley helped the subtle sense of acceptance to settle in..
I am very blessed to have such amazingly loving caring and understanding people around me to give me strength and support..
My partner has been the wind beneath my wings he has helped me immensely in these traumatic times and been there to catch me when i fall..
My alopecia started as AA however due to the fact that my eyebrows are almost completely gone now me eyelashes are disapearing rapidly I figure it is moving on to AU.... stink
During this time i have spent a ridiculous amount of money trying out different alternative remedy's therapy's mentalities but unfortunatley to no avail.. I had my hair tested before i shaved all my hair which was pretty much one month into it.. The results returned with extreamly high levels of arscenic lead and mercury.. They were quick to decide that the heavy metals were a prime cause of triggering the alopecia..
I have lived quite a wholesome lifestyle most of my life.. I have been conscience of what i eat and and very particular about using natural products in respect to my body and the earth, when i did have hair I let it be, never used hair dye or even went to hair dressers.. I kept it natty...Natural...Hmmm Maybe i didnt give it enough attention! My hair was long and lushous and had become a very big part of me and my image, I just let it be..
Any who This is my reality now and still i am just letting it be.. I will continue to get rid of these unwanted heavy metals, I find it hard to stick to the routines of different treatments.. but endevour to rid my body of these metals. as my witch doctor reminded me it may just be a blessing in disguise or i may have never discovered the heavy metals within me..
I have been wearing scalfs on my head since i shaved, They have been comforting to me as i was always used to the weight of my dreads/hair.. Only three times have i worn a wig out.. agent 99 they call me.. It was great! so may people didnt recognise me..
I would like to think i will feel comfortable wearing wigs on a daily basis... or just when ever i feel like it without feeling a bit uncomfortable with thoughts of feeling fake.. No offense to those that wear wigs.. I envy you! I just havn't managed to get my head around it.. However I want to, because i love how they can change your apperance just like that... I guess when ive lived with this condition for just a bit longer and found a bit more acceptance i might just have to start by buying some more wigs..
O and to mention going out in public with an almost completely bald slightly patchy head... Ahhh mad respect to those that do!!! I will get there again one day and feel fine about it... I must say I am glad summer is over now! I was dreading it before its arrival and am pissed off a bit for allowing this condition to prevent me from living life to the fullest.. I am striving to do what ever my soul desires with no restrictions in regards to lack of hair... Then maybe I may learn a vital key to open doorways to possibilites un-imaginable!
Thank you to all that felt to read this blog..
I wish for all Alopecians to find the strength and courage to rise above all mind limitations that prevent us from living to our full potential..
And I hope that we may find peace within our curious minds as to why we have been chosen.. embrace life, breathe deep love oneself unconditionally respect and enjoy!!
Ti Hei Mauri Ora
P.s.. Can any one please explain to me how to change the profile picture?? tanku!! Xxx that was the old me..teehee
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Comment by Stephanie on March 23, 2010 at 12:48pm
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Look across the top bar at My Stuff and scroll down to My Profile. The first thing is your profile picture. Just select the file (the picture you want) and you can change your profile picture.
Hi Kia! I have questions for you, too. Do you know how you took in all those metals? I am curious as to how you even found out, but also how one gets them out of the body.
I love your head scarves. They look great and seem to suit you. I think that what you hear again and again on this site is that it's such a personal decision whether to cover up and if so, how. If you miss the weight of your hair a human hair wig is definitely heavier, especially if you have a long one. If you feel "fake" walking out in your current wig it is definitely NOT the one for you.
You have a beautiful face so I think that any option will work, it's just a matter of what makes you most confident. Thanks for your blog, Stephanie
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Comment by Hilary on March 23, 2010 at 7:29pm
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Kia ora kotiro! Ka mau te wehi koe!
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Comment by Michelle L on March 24, 2010 at 12:40am
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I love this blog post! I am just at the beginning and have very thin hair and rapidly thinning on top. At what point do I give up and shave / wear a wig? You are an inspiration to me and I think you.
xoxo
Michelle
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Comment by Kris Fenchel on March 24, 2010 at 9:23am
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There is no way around it Alopecia SUCKS!!! However, it does make you see the world a bit different, and give you a better understanding as to what it means to be "different" and to have strange eyes on you. You sound as if you have a handle on what is going on though. I have had alopecia for 22 years, I wish I could tell you that it gets easier with time....I guess it does to a point, but I still look in the mirror and wish that I had hair. One thing that alopecia has given me though is an appreciation for the good things in life, good friends, good times and a great family for support. There was a time in my life when I thought I would never find someone who could love me this way, and then I met my husband. Now I am happily married with a wonderful daughter.....so life it good.
I have to tell you that in my circle of friends are a group of boys (men) I met (back before I was married) from New Zealand. These guys took me into their "tribe" as they called it and accepted me 100%. Never once did they tease, or laugh, or even care that I had no hair. They accepted me for who I was, and for that I have always been so thankful. And even though they are back in NZ and I am not sure if I will ever see them again....I consider them my friends. Kiwi's are the coolest in my book.
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Comment by Clara S. on March 24, 2010 at 10:49pm
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Your head scarves are beautiful, I love the way that you tie them. For me, i've been really enjoying wearing wigs but initially I had that fake feeling too about them...i also didn't feel comfortable...but look at me now. i'm not sure if it's because I've accepted my condition and am more comfortable with myself overall that I'm having so much fun with wigs!
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Comment by Mjay on July 19, 2010 at 10:28pm
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Kia Ora, wow this was wow to read, good on ya chick, you sound like youve just accepted whats happened and ploughed on through life ! Kapai!!!!! Im actually not in Aux, i live in the dirty ass south...im still sussing my way round this site, so thought here would be an okay place to leave a message.
Kia kaha mama
<3
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Comment by Mary on July 19, 2010 at 10:38pm
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Great blog post! You sound like you're at the point I was a couple of years ago...not feeling good about wigs and slowly getting used to this new "me". That's about the time I made the scarf video "Alternatives to Wearing a Wig".
Now it's two years later, and I've moved on and life is good. I thought I'd never get over being depressed and angry all the time, but you know what? I have so many things I want to do, and so much to live for....having no hair is the least of my problems. I've accepted and even become proud of this bald lady I see in the mirror. I like being unique.
Part of my reason for creating International Alopecia Day was to encourage more women to give the "cool" option a try, even just for one day.
Good luck to all, and hang in there.
Mary
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