Comment by Jess (Jordyn's Mom) on November 12, 2009 at 9:39am

You will find out Matt that your child will show you more strength and courage than you can ever imagine. Its amazing how children deal with things much differently than us parents. I was devistated when my daughter was diagnosed with alopecia areata at the age of 2. By the time she was done she had alopecia totalis. Her hair grew back then fell out again..they are strong children..stronger than I would probably be in the same situation. There is a program call the locks of love,,you ought to look into that. Right now my daughter Jordyn is awaiting the arrival of her human hair wig that suctions to her head. I think for your 12 yo this would be a great option. My Jordyn is not comfortable enough to go natural to school but she has and she doesnt like the synthetic wigs she says they are too itchy..so she wear her crocheted beanies, she loves them. She will go natural around close friends and family. You should look into the LOL Im sure you would qualify for a nice suction wig for her and she gets to pick her length, color. its great.

Comment by Matt (Mikayla's Dad) on November 12, 2009 at 10:16am

Thank you! I will look in to LOL...she isn't quite comfortable enough yet to shave her head, and I know that it has to be shaved to use the suction wig. She did say that she wants to "buzz cut" what she has left, which is about 15% of her hair, so she might be getting closer. We tried Hair Club for Kids for quite a while, and never got a response. Then my wife got in contact with Pink Heart Fund, and the lady there sent her a beautiful real hair wig, but it was an average adult cap, and she wears a petite child's size right now. We are working with Hair Direct right now, but we have to pay for everything, and we're hoping that 2 per year will work for her. We don't mind paying if that's what we have to do...we'll do whatever we have to, to help her be as confident as we can. Thank you for the information!!

Comment