Alopecia World
www.alopeciaworld.com
My daughter
My purpose of being on here is to find support for my 8 year old daughter.
I have had alopecia since I was 12 (which fell out in 7 days), I am now 38 and my daughter, just two weeks ago developed a alopecia spot, it is slowly thinning out, and she seems to be going along the same path as me. However she has been lucky in the fact her mother (me) has experienced it. We have sent letters to the parents of the children in her school and she has had a question time with her class (the teacher was so supportive)so she has started with a very positive attitude towards it.
We both have an over active immune system and we both also suffer from Hasimoto disease because of this auto-immune problem.
I would like to find friends of the same age for her to write to, to share her experiences with and know that they understand what she is going through.
If you know of anyone her age, please contact me.
-
Comment by Me&myGirl_Aussie on March 20, 2012 at 5:59pm
-
Thanks Riana, I will look into that.
Regards, Bridget & Brooke
-
Comment by Vesna Devcic on March 21, 2012 at 12:30am
-
Hi Bridge & Brooke
I notice Riana has sent a link to our page www.aaaf.org.au
We also have a few resource materials like the following which quite a few of our supporters have said has been great for schools etc....http://www.aaaf.org.au/index.php?page=parents-support-pack
I know Wodonga is a fair bit away from Syd / Melb but if you ever get to come to one of our events it would be worthwhile for both of you to meet other fellow sufferers!
We have a youth ambassador as well if your daughter would like to communicate with her she is on our page as well...
http://www.aaaf.org.au/index.php?page=youth-ambassador-2
Hope you find something amongst these pages that will assist you with finding some support or perhaps even thinking about starting your own support group :) (we can help as well :))
take care
Vesna
-
-
Hi Vesna
I have used the school pack from the aaaf site, it has been very helpful, we made up letters to the teachers and parents using the templates and Brooke has found it great being able to talk to her class and friends about her hair loss. (something that I found very dificult to do)
It was a contact from the aaaf site that put me on here. I was never aware of this site, and I must say its great.I appreciate everyones help, its fantastic.
Cheers
Bridget
Comment
© 2024 Created by Alopecia World.
Powered by
You need to be a member of Alopecia World to add comments!
Join Alopecia World