Comment

Comment by JEANETTE on May 22, 2015 at 4:28pm

And by the way...darleneys boyfriend didn't know how to take it and asked for some alone time because he didn't know much about it! After a few weeks without his girlfriend he realized his happiest and best times was with Darleney not a wig! he loved her for the person she is and not for what she has! He even proposed to her!

I hope my daughter finds a good hearted man as darleney did!

Comment by JEANETTE on May 22, 2015 at 4:25pm

Yes, you are different but that's what sets you aside from everyone else. Do not think its for the wrong reasons either! I have a friend her name is Darlenie and truth behold she had same issue through highschool and college but had that hidden secret that set her apart from all the others. Even being excepted she didn't except herself. Now after graduating college and realizing their are much bigger problems in the world around her outside her bedroom she finally decided to "Come out" To be honest with herself and friends that never knew of her condition. That would include her new boyfriend! That is where her main concerns were!

So, for her to do this "Coming Out Documentary" she asked me if I was willimng to have my daughter involved in her project explaining her story! At this time my daughter was 6 years old! Yes, she was still dealing with her own but my daughter was always the girl to stand out on stage whenever she did a school show. I wasn't going to let that part of her die because of her total hairloss! Instead, I had her do this documentary and it turned out to do a lot more than we expected. You see during the recordings and photo shoot darleney spoke about coming out and her hair loss issue but still never took her wig off during entire project til we took this project outside publicly to a PARK AREA!  My daughter began  to give us a hard time during the photo shoot and I couldn't understand why? Until I asked the question? What happened that you don't want to take any more photos with Darleney? My daughter replied back but spoke towards Darleney's direction and said because she keeps saying we are bald and beautiful but she hasn't taken off her wig the entire time we took pictures!

My daughter just called out on the girl that was doing the project! darleney didn't realize it til that moment! My daughter said I don't want to take any more photos until she takes off her wig! I don't have a wig but Im still taking pictures!

So, Darleney had no choice but to take off her wig! She told both me and the photographer it was the first time she ever went out bald since she was diagnosesd ahe has always been with a wig! This was very hard but at the same time she found it easier being called out by a 6 year old that is told how beautiful she is but you with a wig on cant feel the same way!

Darleney immediately looked around her as if everyone would drop what their doing just to get a look! It didn't happen like that! She was surprised that , nobody really noticed or cared! Maybe holding that fear inside for so long and finally giving yourself that opportunity, made her realize she built the fear to be much worse than it really was! Not the Alopecia! They continued through the day with their photos! My daughter is now 7 filled with confidence! I allow her to choose if she wants to wear a wig or not! Darleney is doing random gatherings at local colleges through sororities on Alopecia awareness! My daughter tags along to also tell her story and get people involved in the cause!

My daughter happily chooses to go out bald! does she wishes she had hair, absolutely, can she resolve it absolutely not! Is there a cure, nope and if the supposed cure burns or itches, she rather go out bald!

I think her positive attitude comes from me taking her to a very dear old friend of mine that because of a health condition she doesn't have legs or hands and her life is very difficult! once my daughter compared to what it was like loosing limbs vs. loosing hair it was easier for her to understand that as long as your happy with urself nothing else matters! Its true people could come in and destroy your confidence and attitude for their pleasure but why let them! That's a form of hate and jealousy!

If you shine like my baby Jazzy does everyday! Don't allow anyone to take it away! If your down about your condition go out and make someone else's day! You will know what the true meaning of inner beauty and self worth is! Keep in Mind, god wouldn't give you anything you couldn't handle! that is to say, life goes on and this hairloss issue shouldn't be the deciding factor in what makes or breaks you!

It should make you stand out from all the others and give you the strength to wanna do bigger and better things than the average person!! Make your mark in the world! Don't let alopecia mark your world! Your here for so much more, the exciting part is finding it! What makes you!

Comment by doodler on May 19, 2015 at 10:34am

Hi Autumn,

I just joined alopeciaworld when I read your post.  I really wanted to join the voices in telling you how beautiful you are, and don't fret things will work out eventually.  At your age I experienced major hair loss also, almost half my head.  Everyone is different, but in my case, it all came back within a year or so.  But I still get spots to this day (small ones, most are not noticable).  Nothing like that 1st time though, and being 17 it is so difficult!  I remember!  The bandanas, the wig (that I cut myself and ruined).  The worst part was the uncertainty, never knowing when the spots would stop coming and when/if the hair would come back.  Just when your uncertain about so much in your life already, you have to steel yourself to this big question mark -- I remember it well.  You are definitely more than your hair, a beautiful girl.  One day, even though things may be the same, you will feel more in control of this.  Your whole is in front on you, and next year things will be better -- just hang in there!

Comment by shanti on May 9, 2015 at 10:55am

Hi, my name is Rheshee and I am a 40 year old Indian woman who has lost all of my hair for the last 10 years ( started when I was a teenagger but came back a few times). hAfter wearing wigs for the first few years, and feeling like a phony I finally decided to wear scarves and eventually nothing at all. I explain to people that I do not have cancer, and you would not believe how many people accept and admire me for being brave enough to not care. It was a journey, however and I was extremely self conscious, depressed and unhappy about it before I got to where I am now. There are always going to be some insecure, cruel people who comment but the majority are kind, accepting and see me for who I am not what I look like. Alopecia taught me to love myself inside, no... really, as before I used my looks to hide behind. We are not just more than our hair, our hair has NOTHING to do with us at all. You are beautiful, and I hope one day you will be so proud of that that nothing will stand in your way and you will not let being bald define you. I don't wear make up, eyelashes or fake or drawn on eyebrows and although I could probably look more attractive or normal with them on, I feel comfortable as I am. Hang in there, if you decide to wear a wig, scarf or whatever it is fine so long as you remember that the real you is just as attractive and beautiful with or without hair. It also makes you unique, and challenges such as this one certainly make us stronger in the end. Hang in there, I remember not being able to get out of bed some days and crying myself to sleep and now I actually forget I have not hair and even go out to pubs and bars with friends ( which took some psyching myself up for).It gets so much easier with time, and I really hope it does for you soon. Thinking of you, lots of love, Rheshee

Comment by Jim In Cali on May 7, 2015 at 2:09am

Hi autumn, first you are simply beautiful. Most girls would gladly give up their hair to look like you. Yes being a teenager sucks, and all of us, even without alopecia went through the same thing as teenagers. I got alopecia at 45 but my teen years were just like you describe. As a kid You are picked on because you are too short, too tall, too fat, too skinny, too ugly, too good looking, not athletic, jock etc...

Hope is around the corner. Within 5 years their will be finally a procedure that works and quite possibly a cure. At least 3 different modalities (ways) are in clinical trials that have shown great results.
Also Google Angela Christiano, genetics researcher at Colombia university and read her story. She has Alopecia and changed her research to Alopecia after her diagnosis.

Comment by Humbled on May 7, 2015 at 12:43am

  Hello,

     Firstly would like to show my appreciation for all your lovely support for our brothers and sisters! I had alopecia for 7 months back in 2014 and tried ginger (as advised by my local hair salon) and aloe Vera (as advised by grandma) pulp direct to my head prior to going back to a solution I had when I was in year 8 (swimming carnival really got me stressed to the max) when I first experienced alopecia, diphenylcyclopropenone aka DCP (0.01%) was then prescribed to me by the doctors and I recalled it as it worked the first time.

    I went to Fiji for a friends wedding (best man, God is good:) and was bitten all over by bed bugs >.< the most excruciating experience to have when trying to sleep ( I had near sleepless nights, just glad I had a special puffy jacket that made it somewhat bearable). When I came back a small area of my head started to reveal scalp and after treating it with anti-infection cream, I realize it kept getting bigger. So after 3 months of application with DCP I saw very little difference. I got some itches and got worried (not to mention the thoughts creeping in when I realized that I was going to have this spot in my head always)

   I know God has a purpose for everything so I remember remaining faithful knowing that God is with me, with us and will make good and bad that happens in our lives for our betterment if we believe!. I believe my vanity needed lifting to make me see the true beauty! So this time I also applied sigmacort 1% (hydrocortisone cream) as advised by another member of my church. This levitated the pain/itchiness and I eventually started seeing results. Hair! Btw I know this will not work for all of us but I'm sure He sent me back here to post this to those who needs to hear it and have this lifted from them. Hope in God always! May the LORD bless you all and keep you always! <3

 

   Keep faithful beautiful people!,

   Ryan

Comment by phillips42 on May 6, 2015 at 8:11am

My son is 14 an he had dreads an lost all his hair in less than 15 days all he dose is cry an so do

Comment by Jean Noble on May 6, 2015 at 4:19am

PLEASE LOVE YOURSELF. It's taken me years to be able to do that. I'm 71 years old and I've had alopecia for as long as I can remember and I've worn a wig since I was 16. I wish there had been support when I was young. The only other person that I think had slopealopecia was an old lady that lived over the road to me and she always wore a black bowler hat and you could never see any hair. I longed to talk to this woman but I was scared she didn't really have alopecia and besides she hardly ever came out. I never spoke to my friends about it even though I knew they knew. I got married when I was 18 ( I had known my husband most of my life) we never discussed my condition. I always wore a wig in bed until one night my husband was out and I had gone to bed early but I was warm and I'd taken my wig off and fallen asleep. When my husband came to bed he woke me up. I straight away reached for my wig, my husband sighed. "I saw your wig on the bed and thought you had another man in bed" he said. The relief on his face said it all. I was never afraid to take my wig off in front of him again and he was very supportive of me. I went on to have 3 children and each time I was pregnant my hair grew and after I had each baby it fell out again. I still didn't really talk about it to anyone and I used to hate having to go to the hospital to get new wigs ( the wigs them days were horrible). It wasn't until I saw people on this site and on television and in magazines that I realised its nothing to be ashamed about. I talk to people now about it and I find most people are okay and if they're not well that's not their problem not mine. I appreciate all the people that love me and accept me for who I am and I also love myself now. Appreciate what you have got a lot of people are a lot worse off than us. X

Comment by Debashish on May 6, 2015 at 4:16am

Hello everyone..

hair fall for scalp we can overcome by wig.. but what about eyebrows? do anyone has solution for this?

without eyebrows one's identity is lost.. i am dealing with problem.. please help me with any kind of solutions. 

Comment by Cindie on May 5, 2015 at 10:47pm

You are young and want to fit in, and I do understand.  Alopecia is traumatic enough without being bullied for a condition that is beyond your control.  Is there any possibility that you can be cyberschooled, or "homeschooled."  In the past, I never thought these two options were a good idea, but more and more I believe they are viable alternatives to protect young people from bullying, since schools don't seem to be doing a very good job of it.

• ‹ Previous
• 1
• 2
• 3
• Next ›
• Page