Comment by sallylwess on May 5, 2015 at 5:05pm

I'm so sorry for the pain this is causing you.  I wish there were no alopecia.  It is a cruel disease.  It is helpful to talk about your pain and your loss.  This will help you move on.  I'm an grandmother suffering from this disease.  I feel like you do many days.  I ask why 90% has hair and I don't.  I wish I had words that gave you more comfort.  You are right to want to talk about this with someone.  Please find that person.  Hugs to you.

Comment by momoftwoboys on May 5, 2015 at 6:15pm

I was 11 when I lost all of my hair.  I am 36 now.  It definitely sucks.  But one thing that I have learned over the years is that people that have an issue with your hairloss are people that you don't want in your life.  When my friends were questioning whether or not a boy really liked them or not, I knew if mine did.  I knew that if they could accept me with a wig, they did care about me.   I have an awesome husband who is so supportive.   Do I still cry?  Yep.  Do I still hate that I can't have my own hair?  Yep.  It's normal.  But, I don't let it consume me.  Just like someone that has a missing limb or has to deal with other medical issues, you have to learn to live with it.   It will make you stronger.

Comment by nappylee222 on May 5, 2015 at 8:47pm

Autumn,

I wish I can give you a hug. I understand what you are going through. The emotion of shock, hurt, embarrassed, and anger. To date, it's been four months that my hair started falling off and up until now everything is gone. Wig has help to ease all the emotion that I'm dealing with but not 100%. It's a work in progress and I'm working with a therapist in dealing with the sudden changes. Within time it does get better. We have so many things to look forward to in life even though our hair is gone, our breath still remains. We are physically and mentally strong. Our hair may limit us to certain things and our lifestyle may changed a bit, but what didn't change is your inner strength and beauty. Don't ever forget that, people will like you for who you are and not your looks. Because even sometimes the most beautiful girl in the world is even uglier than people who have no hair. Don't let the bullies and their hateful words get to you. Kill them with kindness.

Stay strong and be brave...

Comment by 75franklin on May 5, 2015 at 8:57pm

Hang in there kid! They are developing new treatments each year, so I predict that you will be back to your old self before you turn 21.
- I am 50 now and have been hair free for about 25 years, but now I am taking a test run of the RA drug Xeljanz - and it is working. I had just about given up but and now I am convinced that this wil be "mainstream" in 5 years or less. Keep your chin up - it will not last forever.
- but remember, until it comes back, don't hide away or put off living your life, alopecia sucks, but it can't stop you from doing the things you love. Just be you, do your thing - if people don't appreciate, then their loss.

Comment by Kitty on May 5, 2015 at 9:44pm

I still cry, well, now is less and less but I still cry. I'm 38 and I lost my hair when I was 20. I still remember the day when I first shaved my head; I was able to see my mother through the mirror of the saloon trying to appear strong but when I started crying, she cried too. Anyway, I'm not gonna lie, I'm not happy and I feel completely guilty because I have everything in my life to be satisfied; a daughter that can be call my best lil friend, a husband that tries very hard to deal with my ups and downs and a loving, caring and unconditional family. I relate to your pain, cause I feel it almost everyday, but I can tell you that it gets less painful with time, in the meantime, you just have to continue living and remember that everyone has a purpose, I think that we're special...that thought and my family keeps me going...aaand the possibility of a new treatment that will make my hair grow back, science advances every day. Keep the spirit up!!!

Comment by Cindie on May 5, 2015 at 10:47pm

You are young and want to fit in, and I do understand.  Alopecia is traumatic enough without being bullied for a condition that is beyond your control.  Is there any possibility that you can be cyberschooled, or "homeschooled."  In the past, I never thought these two options were a good idea, but more and more I believe they are viable alternatives to protect young people from bullying, since schools don't seem to be doing a very good job of it.

Comment by Debashish on May 6, 2015 at 4:16am

Hello everyone..

hair fall for scalp we can overcome by wig.. but what about eyebrows? do anyone has solution for this?

without eyebrows one's identity is lost.. i am dealing with problem.. please help me with any kind of solutions. 

Comment by Jean Noble on May 6, 2015 at 4:19am

PLEASE LOVE YOURSELF. It's taken me years to be able to do that. I'm 71 years old and I've had alopecia for as long as I can remember and I've worn a wig since I was 16. I wish there had been support when I was young. The only other person that I think had slopealopecia was an old lady that lived over the road to me and she always wore a black bowler hat and you could never see any hair. I longed to talk to this woman but I was scared she didn't really have alopecia and besides she hardly ever came out. I never spoke to my friends about it even though I knew they knew. I got married when I was 18 ( I had known my husband most of my life) we never discussed my condition. I always wore a wig in bed until one night my husband was out and I had gone to bed early but I was warm and I'd taken my wig off and fallen asleep. When my husband came to bed he woke me up. I straight away reached for my wig, my husband sighed. "I saw your wig on the bed and thought you had another man in bed" he said. The relief on his face said it all. I was never afraid to take my wig off in front of him again and he was very supportive of me. I went on to have 3 children and each time I was pregnant my hair grew and after I had each baby it fell out again. I still didn't really talk about it to anyone and I used to hate having to go to the hospital to get new wigs ( the wigs them days were horrible). It wasn't until I saw people on this site and on television and in magazines that I realised its nothing to be ashamed about. I talk to people now about it and I find most people are okay and if they're not well that's not their problem not mine. I appreciate all the people that love me and accept me for who I am and I also love myself now. Appreciate what you have got a lot of people are a lot worse off than us. X

Comment by phillips42 on May 6, 2015 at 8:11am

My son is 14 an he had dreads an lost all his hair in less than 15 days all he dose is cry an so do

Comment by Humbled on May 7, 2015 at 12:43am

  Hello,

     Firstly would like to show my appreciation for all your lovely support for our brothers and sisters! I had alopecia for 7 months back in 2014 and tried ginger (as advised by my local hair salon) and aloe Vera (as advised by grandma) pulp direct to my head prior to going back to a solution I had when I was in year 8 (swimming carnival really got me stressed to the max) when I first experienced alopecia, diphenylcyclopropenone aka DCP (0.01%) was then prescribed to me by the doctors and I recalled it as it worked the first time.

    I went to Fiji for a friends wedding (best man, God is good:) and was bitten all over by bed bugs >.< the most excruciating experience to have when trying to sleep ( I had near sleepless nights, just glad I had a special puffy jacket that made it somewhat bearable). When I came back a small area of my head started to reveal scalp and after treating it with anti-infection cream, I realize it kept getting bigger. So after 3 months of application with DCP I saw very little difference. I got some itches and got worried (not to mention the thoughts creeping in when I realized that I was going to have this spot in my head always)

   I know God has a purpose for everything so I remember remaining faithful knowing that God is with me, with us and will make good and bad that happens in our lives for our betterment if we believe!. I believe my vanity needed lifting to make me see the true beauty! So this time I also applied sigmacort 1% (hydrocortisone cream) as advised by another member of my church. This levitated the pain/itchiness and I eventually started seeing results. Hair! Btw I know this will not work for all of us but I'm sure He sent me back here to post this to those who needs to hear it and have this lifted from them. Hope in God always! May the LORD bless you all and keep you always! <3

 

   Keep faithful beautiful people!,

   Ryan

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