Alopecia World
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My story
Hi,
I'm new to the site. About 18 months to 2 years ago I noticed that my eyebrows were receding and I developed bald spots on my head. After about 6 months of this my chest, arms and legs were also becoming decreasingly hairy. It took over a year for all the hair on my head to fall out and I have now lost pretty much all body hair, including eyelashes.
I don't know anybody else with alopecia and feel whenever I talk to other people, though they are generally supportive, I can't help but think they can't actually understand what I am going through. Some days I can feel myself getting very down about it, other days I am much more like my usual self.
I would like to meet new people with similar experiences.
I'm new to the site. About 18 months to 2 years ago I noticed that my eyebrows were receding and I developed bald spots on my head. After about 6 months of this my chest, arms and legs were also becoming decreasingly hairy. It took over a year for all the hair on my head to fall out and I have now lost pretty much all body hair, including eyelashes.
I don't know anybody else with alopecia and feel whenever I talk to other people, though they are generally supportive, I can't help but think they can't actually understand what I am going through. Some days I can feel myself getting very down about it, other days I am much more like my usual self.
I would like to meet new people with similar experiences.
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Comment by Tallgirl on August 27, 2011 at 10:39am
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You are in the right place. Just start commenting on blogs and discussions, and people will get to know you! Read up on all subjects you are concerned about, even in archived posts. You will find those who you want to talk to at length.
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Comment by JeffreySF on August 27, 2011 at 12:30pm
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Hi Tom,
Welcome to Alopecia World.
Like Tallgirl said, you are in the right place.
I think talking and sharing your experience with others will help a lot.
Something else I would do is seek out local support and actually meet others going through this thing called alopecia face to face. This will bring some realism to what is going on with you.
Jeffrey
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Comment by Tom on August 28, 2011 at 11:39am
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Thanks for the comforting words guys. Just looking round this site there are so many amazing people on here.
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Comment by AJ on August 28, 2011 at 1:55pm
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Hey Tom, sorry to hear you've lost all your hair. Hope you find this site really helpful - I certainly have!! Totally relate to what you're saying about people being supportive, but just not really getting it, which can be so frustrating!!! Alopecia is still very much a new thing for me too, and I'm finding dealing with it very up and down. It's frustrating when the people around you - friends, family etc - don't seem to understand, or just don't seem to say what you'd really hope they'd say, and it's generally just a big knock on your self-confidence (well, that's how I'm finding it) but reading this site has made me realise that these are completely normal reactions to what's happening - which is just a relief in itself really! And as you say, you still have days you feel your normal self - and ultimately that's just life really isn't it. Ups and downs. The downs are just as normal/important as the ups in some ways. But hair or no hair, there will always be plenty more ups!
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AJ, you hit it right on the head! They say all the supportive things but not the things you want them to say! I'm still coming to terms with it all so will have to take your word that there will be plenty more ups!
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