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Need of help and support
Hello,
And please excuse me for my English
Need of help and support
In France I do not find a doctor or a treatment
I have just read your messages, I can announce you my situation which looks like your problems, > > > in a sense(direction) different, > > > with much more pathology.
I am always in search of a solution,
I ruin myself in doctor, medicine
And most of the answers are " I can nothing for you "
And hooo! I am there!
Only!
In front of a situation which degenerated day after day:
- Disorder of the thyroid ( t4 ) for 17 years (without treatment)
- I am fibromyalgique for 11 years (without effective treatment) last treatment to cylbaltar
- Weight gain / fatigue / pain / miss iron + of iodine + q10 / crises of Hypoglycemia récurantes (without treatment)
- For 2 years, I make oedemas regularly (not identified origin, without treatment)
- A short time later, headaches, dizziness, intolerance in the luminosity
- 1 year ago, viscosuplantation knee / hip
- And for 6 months I have a total alopecia (in 15 days)
- Since, I have a loss of sensibility of the skin, a partial loss of the sense of smell and an intolerance in the sun
No identical problem in my family...
I made:
- PUVA, gives nothing brulure )
- A bolus, one truth devastates, disorder of loins, liver, lungs, bowel, during 3 weeks stop(ruling) imédiat of the treatment
Then nothing more, they dropped me!
I saw medecins 15: general practitioners, dermatos, neurologist, endocrino, rhumato, ophtalmo, gynéco, shrink of the hypnotizers, the bonesetters, medecine quibble... NOTHING...
> > > no relation with Fibro and my other pathologies " finally, normally, because they know nothing "!
Today, I am with a nth doctor of the internal service of the hospital of my city, I wait for a hôspitalisation, for which? To look, but what? They do not know...
How to turn(return) to work? I am alone, my family do not include my problems of health, I always have was alone in front of the disease, for 11 years, but there, it is too much... What that, I did not still pay(pour) a single tear, I do not look, I hide but time goes by already 6 months...
Then if a person in more information or a miracle solution, thank you
And please excuse me for my English
Need of help and support
In France I do not find a doctor or a treatment
I have just read your messages, I can announce you my situation which looks like your problems, > > > in a sense(direction) different, > > > with much more pathology.
I am always in search of a solution,
I ruin myself in doctor, medicine
And most of the answers are " I can nothing for you "
And hooo! I am there!
Only!
In front of a situation which degenerated day after day:
- Disorder of the thyroid ( t4 ) for 17 years (without treatment)
- I am fibromyalgique for 11 years (without effective treatment) last treatment to cylbaltar
- Weight gain / fatigue / pain / miss iron + of iodine + q10 / crises of Hypoglycemia récurantes (without treatment)
- For 2 years, I make oedemas regularly (not identified origin, without treatment)
- A short time later, headaches, dizziness, intolerance in the luminosity
- 1 year ago, viscosuplantation knee / hip
- And for 6 months I have a total alopecia (in 15 days)
- Since, I have a loss of sensibility of the skin, a partial loss of the sense of smell and an intolerance in the sun
No identical problem in my family...
I made:
- PUVA, gives nothing brulure )
- A bolus, one truth devastates, disorder of loins, liver, lungs, bowel, during 3 weeks stop(ruling) imédiat of the treatment
Then nothing more, they dropped me!
I saw medecins 15: general practitioners, dermatos, neurologist, endocrino, rhumato, ophtalmo, gynéco, shrink of the hypnotizers, the bonesetters, medecine quibble... NOTHING...
> > > no relation with Fibro and my other pathologies " finally, normally, because they know nothing "!
Today, I am with a nth doctor of the internal service of the hospital of my city, I wait for a hôspitalisation, for which? To look, but what? They do not know...
How to turn(return) to work? I am alone, my family do not include my problems of health, I always have was alone in front of the disease, for 11 years, but there, it is too much... What that, I did not still pay(pour) a single tear, I do not look, I hide but time goes by already 6 months...
Then if a person in more information or a miracle solution, thank you
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Comment by Bald and Fabulous AKA Terri on May 17, 2011 at 11:32am
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Coccinelle...HUGS to you. It sounds like you have gone thru so very much. I do wish your doctors will find a treatment that works for you. If only to give you some comfort and peace. Stay strong dear friend
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Comment by Tallgirl on May 17, 2011 at 11:41am
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Go to a dermatologist, not a doctor. Also, visit www.naaf.org to see if they know good dermatologists in France who are experts with alopecia.
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Comment by coccinelle on May 18, 2011 at 5:21am
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Thank you for your encouragement and your support
I have already seen more than 15 specialists and 3 dermatologists
Then today I wait for a miracle...
How make you to support this disease?
You work?
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Comment by kastababy on May 18, 2011 at 6:21am
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Vous faites ce que beaucoup d'entre nous l'ont fait - aller d'un médecin à l'autre, puis un autre, puis un autre. Quand on n'a pas une réponse, aller à celui qui ne. Il ya un site en France qui est appelé mon alopécie qui peut être en mesure de vous aider ainsi. Nous faisons tous ce que nous pouvons vivre avec l'alopécie d'une manière qui fait sens. Vous êtes une femme très forte - et les femmes un solide savoir prendre les choses un jour à la fois, et face à chaque nouvelle situation comme elle vient.
Je suis sûr que vous savez qu'il n'y a pas de remède connu pour l'alopécie, et il ya une tonne de traitements disponibles; un certain travail, mais la plupart n'en ont pas. Que vous choisissiez ou non de suivre un traitement est à vous. Il ya toujours des perruques, foulards et chapeaux pour couvrir votre tête si le traitement n'est pas pour vous, ou si vous êtes assez confiant en vous-même vous pouvez aller tout comme vous.
Vous êtes belle, et ici nous sommes tous une famille - câlins et les prières dirigées votre chemin! Tenez-nous au courant!
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