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I figured if i start off by listing all the things i hate about alopecia, then it can only get better right? Sure i can learn to accept it but maybe i just want to go on hating it for a little while longer.
Things I hate about Alopecia
1. I cannot wear my hair in a high pony tail.
2. My hair style of choice is a low pony tail or a loose plait
3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser
4. The way it grows back and falls out when it wants
5. Some days it falls out a little and others it comes out in clumps
6. The way it takes forever. 1 year later and i'm half bald
7. Having to hold my hair down in the wind
8. My ears starting to stick through my hair because of the baldness occurring above my ears
9. Can't colour my hair because the hair i have growing back is too dark and will be noticeable if i dyed the rest
10. Not being able to style my hair
11. The feel of fuzzy hair growing back
12. I can't enjoy exercise as much because i'm worrying about my hair at the gym
13. I can't just "go". I have to make sure my baldness is covered
14. The way my head gets sweaty
15. Tangles cannot be combed out. If I get a tangle, the force of combing it out make the whole bit of hair fall out
You know what I hate the most i think, my hair growing back. I can accept going bald and I can accept having hair but I cannot accept having bald patches of noticeable hair but still too much hair to have a wig. How the hell do i justify getting a wig when i am only bald partially?
What do you hate about alopecia?
Things I hate about Alopecia
1. I cannot wear my hair in a high pony tail.
2. My hair style of choice is a low pony tail or a loose plait
3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser
4. The way it grows back and falls out when it wants
5. Some days it falls out a little and others it comes out in clumps
6. The way it takes forever. 1 year later and i'm half bald
7. Having to hold my hair down in the wind
8. My ears starting to stick through my hair because of the baldness occurring above my ears
9. Can't colour my hair because the hair i have growing back is too dark and will be noticeable if i dyed the rest
10. Not being able to style my hair
11. The feel of fuzzy hair growing back
12. I can't enjoy exercise as much because i'm worrying about my hair at the gym
13. I can't just "go". I have to make sure my baldness is covered
14. The way my head gets sweaty
15. Tangles cannot be combed out. If I get a tangle, the force of combing it out make the whole bit of hair fall out
You know what I hate the most i think, my hair growing back. I can accept going bald and I can accept having hair but I cannot accept having bald patches of noticeable hair but still too much hair to have a wig. How the hell do i justify getting a wig when i am only bald partially?
What do you hate about alopecia?
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Comment by Marie on January 19, 2010 at 9:17am
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I hate the way Alopecia interrupts people's lives, makes them feel bad about themselves, and sucks up time and energy they could spend enjoying something else.
P.S. I wear wigs and am only partially bald. I have about five bald patches at any one time and the rest is really, really thin. But, the patches were socially unacceptable to me, so it was either shaving or getting a wig. You should feel free to get a wig if you want to. It might make a difference. :-)
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Comment by Melissa Harris on January 19, 2010 at 3:30pm
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I can SO RELATE to this list!!! Just know that you are NOT ALONE!!! I'm in the same exact boat, still have hair but I looks like crap, so do I wear a wig, or not, I can't stand it sometimes. I think that's why people do shave it, because the are so tired of all the worrying and stressing over it. I know that I am, but I'm too chicken to shave it. I still have hair now, but I hate it. I think it just boils down to whatever is comfortable for you do to do is the best thing. Other than that, it still sucks. Hang in there, I hope it gets better for you too!! Melissa
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Comment by Georgie on January 19, 2010 at 7:35pm
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Yes, I agree with your list. AA is so unpredictable.....something different every day. Lots of gray area and no black and white.
For a while I avoided going to the hairdresser....but now I do go. I have found that hairdressers are rather sympathetic and willing to work with what you've got.
Yes, I am sad that I cannot style my hair the way I want to...and I have had to accept that. I refuse to get my hair colored in a salon or from a box at a drugstore. I have used henna a handful of times and was pleased with the results after I got the color combination right.
I wore a hat today (because it was so windy) and I was actually impressed with it! It is a nice look.
I've also tried to concentrate on other areas of my body instead....like having a clear complexion and learning to apply make-up better. I've also tried really hard to dress in a way that makes me feel and look better. So, even if my hair is unacceptable....at least everything else in place. Hope this helps!!!!
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Comment by Nicole on January 20, 2010 at 2:27am
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Thanks for all the reply's :) I know a lot of people are accepting and yes, you can still be accepting but also still get annoyed. So it's nice to know that everyone feels the same way I do even though they may not say it.
Georgie I definately agree, i try make the rest of me look better so my hair is not such a prominant point. I have found i feel the least self conscious when i run because i wear a cap and i know my hair cannot blow up and show my baldness.
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Comment by Aspen on January 21, 2010 at 5:41pm
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hey i am 14 and i have alopecia since the 6th grade. now can u imagian going to middle school and being bald???? i know how you feel and everything about stylin ur hair and everything. But u should not be so self conciouse. Just let ur hair do wht it wants i know tht is might be hard but trust me i know i wore a wig for alomost a straight year and i loved it. I felt beautiful again! having my hair fall out was the worst thing that could happen. yes i got picked on but i got over it. Being bald is a pest but i would not change anything for it. bc it has really opened up my eyes on how really beautiful i am. bc with my hair i would always focus on wht it looked like bc i thought that is what everybody saw first. But it is not what they see first is ur personality and ur spirit the way u smile and laugh=]. So what i am tryin to say is tht having hair is not required to show who u really are. Just believe in yourself and be beautiful! and if people look let them stare dont worry about wht they say bc all that matters is that you r beautiful in your own way and no one can change that!
comment back soon
Aspen=]
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thank you so much, that is really nice :) I just can't justify buying a wig when i still have a lot of hair. But then i cant do anything with it because of where my bald spots are. I wish i had the courage to shave it all off and then wear a wig. You must have been so brave to go to middle school with no hair :)
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Comment by Gabriela on January 24, 2010 at 7:13am
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i actually like the feel of the new fuzzy hair ;)
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Comment by Lola on May 2, 2011 at 7:16am
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I think that's a really good idea.
I hate people asking me about my "undercut"?
I hate not being able to wear a high ponytail
I hate the wind
I hate being awkward in the surf because i know my shiny head is showing.
I hate my hair falling out in the shower.
However,
i just bought my first full lace wig, i'm waiting for it in the mail. I feel like a barbie because i picked thick, long hair. Which i probably would have had trouble growing if i had my normal hair .... So that's a plus.
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Wow thats really exciting, I am currently shopping around for a new wig because I get bored with the same wig, but then I want to change to something different that people won't notice.....I should just stand up in front of a lecture and be like "I have alopecia, i wear wigs" lol. Where did you order your wig from? Was it expensive? Oh well, enjoy the long locks, I guess that is the bonus of wigs.
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I got mine from
http://ba-hairapparent.com/index.php?option=com_content&view=article&id=63&Itemid=90&lang=en
It was about $230 i think.
i sent about 20 email to the guy and he was so helpful. I've never ordered a wig so i didn't understand the difference in bases and density - there's so many variables!
I settled on a full lace wig because "They say" you can go swimming and be really active in them, and sleep in them. That's really big for me because i'd hate to have a boy over and just before we get down to business say "hold on while i take me hair off" . You don't have to shave your hair underneath either. if it looks good on me then i think i might because i just hate seeing all my hair come out every time i touch it and it gets all over the house and my flatmates complain. I don't really have it in me to say "oh that's just because i'm going bald" so i'm just constantly vacuuming - too much work!
I've spent heaps of time on youtube checking out wigs and application. It seems like heaps of African American women wear full lace wigs just to protect their hair so there is heaps of info around.
Hope that helps.
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