**New**

I'm a 24 YO female and I've had AA for about a year and a half now. I've done the whole routine of shots, creams, different hairstyles, stress relieving activities etc and nothing has seemed to work. There's days I accept it and days that I hate it more than anything.

I think the hardest part is trying to talk to your family/friends about it and getting angry that they keep saying "It's just hair. Everyone around you loves you no matter what. They don't care that you're losing your hair. People have way worse diseases than you." I understand that people have more crippling diseases and sicknesses than me, but that doesn't mean AA isn't hard to go through, or doesn't defeat me some days. I used to LOVE my hair. I used to love styling it, changing my hair color, and making it look beautiful and edgy. It broke my heart when I found out I had AA. It seemed like it rapidly got worse from me knowing about it, since it only started with a tiny patch of hair missing (which Ileana like that for 2+years) and eventually went all over my hair (after finding out/knowing about it for 3-6 months).

I was fortunate that the first year of having AA only came with small patches that were missing under my hair (which was pretty easy to hide). For the past 3/4 months it's gone all over my head, to the top etc and has become an absolute pain to deal with!

I'm hoping that since I just graduated from college (May 2017), my hair will grow back quite a bit (due to all the stress of college going away). Hopefully!

I've searched all over to find meetings/support groups near me and I haven't been able to find any. So, now I'm here. I'm seeking out people my age, dealing with AA or any type of Alopecia to connect with. Hopefully some of you live close and not in different states so we can meet up! If you do live in a different state, I would love to email/text and chat with you!

Views: 183

Comment by Tallgirl on May 24, 2017 at 5:21pm
Where are you from? What is it exactly that you cannot do out of ALL the things you are interested in, without hair? When I answered that last question for myself, I realized that plopping on a wig (out of many I own) allows me just about everything I want to do, and even faster (no washing and curling daily). Realizing this makes it easier to cope.
Comment by Pmadventure on May 24, 2017 at 5:53pm
I live in Michigan. I've bought 2 wigs, but I haven't worn them out yet. I wear a hat/headbands and it lets me do most of what I like to do. It's the worrying part I don't like (if anything is showing/if people know I never wear my hair normal without a hat etc)
Comment by mjohn on May 25, 2017 at 8:38pm

Im debating about beginning to wear wigs too! I have lots of hair loss but I had lots of hair before it began to fall out so I can cover the spots for the most part. 
I totally get what you're going through, I'm a college senior and am hoping that the stress settles after graduation next year. 

I'm from Michigan too! so if you wanna chat, I would love to!

Comment by Pat on May 26, 2017 at 12:16am

Hi there, I'm not gonna lie - it's difficult coming to terms with alopecia for some of us. Some have an easier time. Some plop on a wig or scarf and get on with it, some don't. It takes what it takes and we cope differently. After many years of alopecia I can still lose the plot (see my recent blog) but hey it's par for the course. I used to hate people say it's only hair too...yes I know it's 'only hair' but I'm the one losing it not you I used to want to say, but didn't. Instead I just smiled and nodded. Ditto when people said have you tried this or that or gave well meaning advice...ugh...Just remember you may feel alone right now but people here understand only too well what you're going through. I'm sure there are young people your age here and I hope they reach out to you. In the meantime us oldies are here xxx

Comment by Pmadventure on May 26, 2017 at 8:25pm
Hey mjohn, I would love to chat with you and talk about all of this! I'll message you.

Pat- thank you for your kind words. It's nice hearing from people that have gone through it longer than I have and have found a way to cope with it. What you said made me smile and thank you so much for that!
Comment by Pat on May 26, 2017 at 11:28pm

The only way I find I can deal with it is by taking it with a smile, kind of takes the sting out of it for me except on those days where I fling my wig over the balcony hehehe Got to admit it was the first time I did that, probably won't be the last :-)

Comment by Katie on June 9, 2017 at 10:26pm

Thanks for sharing your story! I am in a similar situation. Did your hair keep falling out or did it start to grow back? Did it grow back at all in the beginning? Thanks! 

Comment by Tallgirl on June 14, 2017 at 3:45pm
I USED to live in Michigan, too! By the way...non-bald people get uneasy when we talk about this too much. They feel helpless. Maybe grossed out. So...talk about something else with friends and family. Ask them about themselves, and plan things that both or all of you will enjoy. No one wants memories of only discussing sadness and incurable hair loss.

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