New to this!

Hello and WOW! I discovered this site purely by accident and have spent some time reading through so many brave peoples stories. My name is Leon , from Cape Town ,South Africa and am the only person (up and until now) who I knew had this curse/blessing.Well obviously I know others have it but have never heard or read their stories.So thank you for this place to share. I refer to it as both blessing and curse because while it surely did affect me as a child ( since 13) and I had to fight my way through much of my younger life I have since come to realize that it set me on a path which has brought me to where I am at this stage of my life. I am a single dad to my beautiful daughter. I have recently spent a lot of time trying to research as much as possible because I fear that she will be affected by the same symptoms too - my mom and brother also had total hair loss (head , eye brows and eye lashes ) for several years but mine has never grown back (theirs did after 3-4 years) and what I fear most is that my daughter as affected too.
Me? Well I got by okay. I absolutely hate the fact that I don't have eyebrows because it takes away so much expression in ones face and also know that I used to be a good looking kid which changed massively once my hair fell out.

Again , thank you for this site.

Views: 50

Comment by Alex on September 27, 2011 at 5:53pm
Hi Leon, welcome. I like your way of looking at Alopecia. I felt at first that it was a curse but after 10 years I realized it was gift because it did send me down the path I'm at right now. I also feel that I'm a stronger person because of it. I am scared that if I have kids Alopecia will also affect there lives. Not having brows and lashes still kills me inside because I used to act. I will pray that everything will be fine with your daughter, but in any case you have to show her the example that you still are a good looking guy and I mean it, Bald is Beautiful!
Comment by LeonJ on September 28, 2011 at 2:15am
Hello Alex , and thank you! Sure Alopecia does limit us but does it does not make us lessor as human beings. Its very very tough growing up with it and I sympathize tremendously with any child and parent of a child who has Alopecia.
We are here , where we are , because of the cards dealt to us but we also have a future ahead that is in our hands. I have a very positive outlook for the future but my one fear is my daughter developing Alopecia.So I do appreciate your comments and prayers very very much!
All the best
Leon

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