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Newbie parent of child with AA
Hello,my name is Scott,I am the father of a 10 year old girl recently diagnosed with AA. It all started roughly 7-8 months ago. My wife Annabell and I found a small quarter sized bald patch on my daughters head.My daughter,Railyn,already knew of the spot on her head however,she was scare to come to us. She is at the point now,where she has lost almost 50% of her hair,even more possibly.
I'd like to add that Railyn has allergies too milk,eggs and peanuts,among others,milk being a serious allergy. She also suffered a pretty serious head injury and concussion while at school. She took a real wallop to the forehead while on the swinging on some play structure bars.It was shortly after this injury that her AA attack began. Whether or not it has anything to do with her current condition,I'm unsure.
As for treatment,Railyn is currently using Rogaine,along with a topical steroidal cream. She also just received her first spot injections,which went better than I thought,as far as a pain management factor is concerned. It troubles me immensely that the only options are to either just let things happen naturally,or bombard her still developing body with these medicines.
I'm hoping to make some new contacts and friends through this site,in hopes of gaining as much insight and info that I can apply to my daughters needs.
Any and all info would be much appreciated.
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Comment by nicky on April 7, 2015 at 11:37am
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Check out Molly Vazquez on You Tube Search How I grew my hair back. Her videos are very interesting Although my son refuses to try the diet she described. Best of luck.
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Comment by JessicaU on April 7, 2015 at 10:44pm
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We are going to try essential oils and onion oil from what I have been reading online. My daughter was diagnosed in November she had a 2cm by 2 cm area at first. Two weeks ago it had grown to 4cm by 3 cm. Tonight I found 4 small new areas on different parts of her head. So scary! She is only 6 and in kindergarten I just don't want her to get picked on.
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Comment by Alayna's dad on April 14, 2015 at 8:22pm
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Hello, my daughter is now 12. She started with small patches as well. Hers developed to the max. She is now is devoid of any hair on her entire body. The condition can be emotionally devastating, more so for parents. But kids are resilient.They do not see things as final. But middle school has been a challenge.
Do your research. Experience from others is good guidance. Be aware of all the snake oil. Even from the medical community. Ignorance of the autoimmune system is only now being understood. My daughter's asthma scares me more then anything. Steroids are miracle drugs. We use it sparingly.
There are no known cures at this time. Only temporary treatments. It took me a wile to accept that. BUT, there is promising research trials being conducted with an FDA approved drug for Rheumatoid Arthritis. They think it may be available by 2020. Love is the greatest treatment of all.
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Thank you so much for those kind words. I'm certainly hoping the best, and you right, it's been very tough. I'm very scared, using so many meds. Topicals, rogaine and now spot injections. She's only 10, and she's really has a rough go, her whole life. I truly feel for you and your family, and I truly hope somehow, someway, that a cure can and will be found.
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Very sorry for your daughter -- I hope her hair grows back soon! I would definitely look into the new Xeljanz therapy they are doing (sp?) for her though. If a doctor would give you a chance with that, it might be better than all the others together. I did injections for years, they take time to work, sometimes intermediately they make little dents in your head too. I would do a comparison between cortisone side effects and the side effects from something like Xeljanz (immune suppressant). I think if my daughter got this (like me), I would want her to have this new stuff. I've had AA for 30 years, had one major shed when I was a teen, and little spots now for the rest of my life (now and then). I don't do cortisone shots anymore (because it's minor now). The immune suppressant really makes a great deal of sense, since that is the main cause of the AA. It works systemically, so you don't have to go over each spot (which is hard to do after a while), and has had some great outcomes.
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