Alopecia World
www.alopeciaworld.com
Off the Xelganz
I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.
My dilemma is I have a two year old beautiful baby girl. I love the way this drug has grown my eyebrows and some lashes back but I fear the risk factor involved with depression of my immune system. Do I give into vanity and take this drug or do I put my long term health above the risk? As of now I have stopped the Xelganz. I have concluded that my daughter needs a father more than I need two two-inch strips of hair above my eyes. I fear losing my brows and will continue my steroid injections for now.
What are your opinions on this subject? Is the drug worth or not worth the risk? I greatly appreciate all of your thoughts.
-
Comment by Frrankie on September 18, 2017 at 11:45am
-
Lol, what about vegans Cheri A.
-
-
Cheri A, how could you not consider orthodox jews. Tattoos are prohibited in 5hat religion. Sorry but I don't think you are being considerit.
-
Comment by Cheri A on September 18, 2017 at 12:16pm
-
I thought we controlled for Trolls here.
-
-
Cheri A, Hana is not a troll but a fraud. Look into both issues I mentioned. Not trolling anyone but Hana here. Just shinning light on a nerrow perspective on why to use a Jac inhibitor.
-
Comment by michael.kiyoshi.salvatore on September 18, 2017 at 4:50pm
-
Thanks for sharing your story Brian! I'm sorry the medication had such bad effects on you. How did you manage to get your insurance to cover it, though? I thought it required FDA clearance
-
Comment by hagster on September 18, 2017 at 5:23pm
-
iauiugu - Xeljanz has been approved by the FDA. In fact, there is supposed to be a Xeljanz topical coming next year.
A lot of insurance companies do not question meds that have been prescribed for a patient.
Since it is a med for Rheumatoid Arthritis, using it to "grow hair" is considered off label use. Should be OK as long as the doc informs you that it is off label.
-
-
Hugster, you are a a great source for information. I am not being sarcastic. I almost feel this thread is placed by snake oil salesmen losing $$$ to xeljanz.
-
Comment by Dr. Hina on September 26, 2017 at 8:07am
-
Everyone is free to express their opinion so be it .... continue the defamation.
-
-
Dr. Please inform me on your knowledge of Alopecia. Will your special oil help prevent other autoimmune diseases. There is evidence that the risky use of Jac inhibitors ie,as prescribed by a Medical Doctor may prevent or treat multiple autoimmune diseases. DR if you would stop defending yourself for just one post and inform me on your vast knowledge of Alopecia I would be greatful.
-
-
Frrankie - Humira is also for certain autoimmune diseases. My Derm wanted me to try it for my Granuloma, but I couldn't get past the high incidence if users getting Lymphoma (cancer). Plus my son & d-i-l are both docs (PhDs in microbiology & nutrition) and they said not too. I will note that you can live an average of 20 yrs with Lymphoma, unless the cells flip to Large B cell (?) then you're a goner. Is my life worth risking for a skin disease? Not in my book. But, thats a personal decision I had to make.
My granuloma was horrible and went to places on my body that it generally never goes. I ended up trying UVB treatments and got burns by the third time (still really low level) so quit. Luckily, went into spontaneous remission, but 6 months later AU took all my hair and I've been dealing with that since.
© 2024 Created by Alopecia World.
Powered by
You need to be a member of Alopecia World to add comments!
Join Alopecia World