Alopecia World
Where acceptance is all there is!
Off the Xelganz
I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.
My dilemma is I have a two year old beautiful baby girl. I love the way this drug has grown my eyebrows and some lashes back but I fear the risk factor involved with depression of my immune system. Do I give into vanity and take this drug or do I put my long term health above the risk? As of now I have stopped the Xelganz. I have concluded that my daughter needs a father more than I need two two-inch strips of hair above my eyes. I fear losing my brows and will continue my steroid injections for now.
What are your opinions on this subject? Is the drug worth or not worth the risk? I greatly appreciate all of your thoughts.
Comment
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Comment by Return_life on September 13, 2017 at 9:51am
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skin cancer? wow that did escalated quickly.
it's 2017 my friend. we have no idea what causes cancer. my brother in law died of cancer 2 years ago, he was 35, he never smoked didn't touch alcohol and was slim.
millions of people worldwide are taking biologics for multiple reasons. it's your choice. drug free for a healthy individual is obviously better but us alopecians... are we really healthy? our t-regs are confused. truth is that we don't know what is happening internally. studies demonstrates alopecians have more diseases than healthy individual.
am not pro drug. am pro happiness.
having eyebrows and lashes is nothing too much to ask for. complete hairless it's weird looking. u know it and I know it. it sucks. one could even think about having eyebrows just to make his kids feel more confident about him/her.
women have wig and make up, unfortunately we have no other options.
best of luck.
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I am leery of all the medications prescribed so freely. I don't necessarily think adding all of the chemicals to the already stressed body makes any sense.
I'm considering going drug free for my condition and just living with the results.
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Comment by Rascalx2 on September 13, 2017 at 9:02am
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I have been in the exact spot you are in the past few days. I have been on xeljnz for year but had increased dose and past months have had full eyebrows, full beard, full sides temple area on head. Its all white turning dark looks salt and pepper, I have 5 yr old twins and think that it is more important to be around for them than have brows, but i m still on it right now and have got to stop taking it because Im constantly afraid of lymphphoma
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I also am losing hair and have lost my eyebrows. When 1st diagnosed Dermatologist put me on meds. The side effects so bad, wound up in the emergency room, that I'd rather lose hair than put my body at risk. After a visit to my regular doctor she suggested I check out permanent makeup / tattoo brows. After about a year I checked it out and went for it. It is so nice having brows again. No worry about if they have worn off while I'm out. Swimming is fun again. I highly recommend. Good luck.
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Stop the drug! Have your eyebrows microbladed -- it's awesome. I have NO real eyebrows -- and had them microbladed -- they look real and natural -- no one ever said a word -- which is a GOOD thing!
Good luck!
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Comment by Debbi Fuller on September 13, 2017 at 8:33am
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oops, just reread, meant THEIR first commandment.
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No amount of hair growth is worth risking your health. Never, no way. You did the right thing by stopping it Brian. I actually don't even think it should be recommended by doctors. Isn't there first commandment, "do no harm"?
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Do what makes you most comfortable. I did stop all the injections. I'm losing a lot of hair but I can't deal with the pain and weight gain. I'd rather lose the hair and still fit into my clothes and go out and be active. Your baby girl is going to love you no matter what.
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Wow, those side effects sound scary. I think only you can determine what is best, though it sounds like you already know.
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Same reason why i dint bother with starting the steroid injections. I'm now traveling to US to get microblading work done. wish things were lil bit more easier.. lol
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