Comment by BarbaraK on May 2, 2015 at 7:29pm

Aimee,
Is clobetasol available over the counter, where exactly did you have acupuncture if you don't mind me asking

Comment by elisa on May 2, 2015 at 9:16pm

No, you have to get this by prescription. You can also try using ketoconazole shampoo 2%, which you also need by prescription. I think the 1% shampoo can be bought over the counter. 

Clobetasol you use for 2 weeks then stop for 2 weeks and then continue the cycle (2 weeks on , 2 weeks off.) It's a topical steroid. The reason being that it could cause thinning of the skin if used continuously.

Comment by elisa on May 2, 2015 at 9:26pm

Here is the over the counter brand.

Comment by April Ingram on May 5, 2015 at 2:55pm

Hello I have had A.A. since I was 18 when I turned 30 all my hair fell out. I wore a wig for more than 7 years. Last March my Dermatologist prescribed Diphenycycopenone (DPCP). In September I stopped wearing my wig I had my hair growing back. It's not perfect but it has helped me. I still get injections in my eyebrows and the stubborn spots on my head. I was adamant that I didn't want to try anything else because I didn't want to get my hopes up. I'm glad I tried one more thing. Good luck

 

Comment by Heather Lorelle Mattisson on May 5, 2015 at 3:00pm

Hi there Barbara!

I started taking plaquenil, and after about 2 months, my hair began growing back.  I stopped taking it after 4 years, in January 2014, and then in March 2015 I discovered a small bald spot.  I am not going back on the plaquenil because it caused massive skin inflammation for me and I think was hard on my liver.  Now I am bald, as you can see, and I love it.  I of course know that baldness isn't for everyone, and so good luck to you.

Comment by Dawn on May 5, 2015 at 3:14pm

Hello, At the beginning of my diagnosis i tried Clobetasol which did nothing. Then went to injections which did help but after doing research on injections and long term effects i stopped. I recently started taking food grade diatomaceous earth and have alot of regrowth.   

Comment by April Ingram on May 5, 2015 at 3:23pm

I to have started taking Diatomaceous earth for almost a month now. Haven't noticed any changes with my hair regrowth but going to give it a couple months. I hope it helps. Heather you look beautiful. 

Comment by Kelley L on May 5, 2015 at 3:34pm

My daughter has had regrowth with an ultraviolet laser the dermatologists use for psoriasis. It is called the Xtrac Laser and you have to do it twice a week. I don't know anyone going from no hair to regrowth but it seems to stop or slow down the progression and encourage new growth for my daughter. It is not always covered by insurance and can be very expensive so it's something you would want to pre-approve with insurance.

Also, as an aside, I recently visited a Celiac Disease specialist in Boston because we discovered my daughter has Celiac. He confirmed that many Celiac patients have Alopecia and most of his patients with both conditions get well and regrow hair once the Celiac is under control through a strict gluten-free diet. We are cautiously optimistic.

Comment by Mark S. Hansen on May 5, 2015 at 4:06pm

I guess I may be bias because I have had alopecia Universalis for 45 yrs. My hair started falling out in the 4th grade and before I was 15 I had none. But what I have found out over the years is that this is NOT a demitalogical problem. It is and internal medicine/Endcronoligist problem. And I can guarentee you that the only sure thing about this condition (unless you have what I do) is its complete undependability or unsureity. I have read countless  posts about this injection and that balm etc. I seriously wish you all the luck in the world. I really do hope you find something. But as far as I am concerned there is no sure fire cure for this condition. Call any Endrocronologist and ask and get back to me if you find out different. Thanks, Mark S Hansen  

Comment by wiz on May 5, 2015 at 4:29pm

Go to an endocrinologist. Do it. I have a full head of hair

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